Happy Spoonaversary!

Today is the 10 year anniversary of my chronic pain journey! What kind of gift do I get for a ten year “Spoonaversary“? A chrome wheelchair? Imported silk compression stockings?

It’s the anniversary of the day that I was invited to go shopping with my mom and sister, but I said, “Nah, I have so much laundry and chores to catch up on, and I kind of wanted to try out this new pilates video. Next time… Have fun without me!” After my workout (dancing ballet around the living room to Fiona Apple), and in the middle of cleaning, I went down the basement steps with an armload of laundry and fell. When I landed on my leg, I felt and heard an audible lightning bolt SNAP run through my entire body. I knew I had broken my ankle. My father came and took me to the ER where my husband met us. But they said it was only a sprain. Just a few months later I was diagnosed with the debilitating, incurable, PERMANENT condition called Complex Regional Pain Syndrome (RSD). It is said to be one of the most painful medical conditions a person can have. I was 22.

Lesson: Always take the invitation to go shopping over chores :/

Why should I look back on a sad day like that? Why remember a time that changed my life forever? Why should I even think of a day that crippled me and started a domino effect of chronic illnesses that have brought down my body since?

I celebrate October 24th because I have made it through 10 years. That is 10 years of life survived in spite of all of the pain and turmoil Complex Regional Pain Syndrome rained down. That is 3,651 days I have CHOSEN to live with this monster. Every day that I fight on, I honor the warriors whose lives have been taken from them because of this disease and for those who live daily, consumed in pain.

When I was diagnosed, I said: “No way! I cannot take this nightmare for one more second!!!” So I say to that terrified me at 22 years old: “You did it girl. It’s like some kind of miracle!”

I’m looking back on the last decade, knowing I am only alive because of the loving support of my husband, our wonderful family, online friends, and those physicians who have cared. This disease spreads, and it spreads through the whole family. They have come with me on this journey, and I am so thankful for their compassion and support. I’m not here because of my own strength by any means. People say that God doesn’t give us more than we can handle, but LIFE certainly does. And God sends us the resources to make it through life’s amazingly difficult valleys. I’m here today because His strength is sufficient when mine never is.

So what is the appropriate gift to give my body on this ten year celebration of life? We have been through so much together, body! (I don’t want to make her mad, you know…) If you have any suggestions, please share.

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This blog is participating in CRPS/RSD Awareness Month for November. Please subscribe below to read inspiring stories of survivors this coming November.

About abodyofhope

I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 15 years living with chronic pain, patient advocacy has had a powerful effect on my life through meeting so many remarkable teens, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on. Eight years ago, I became bed-bound from a variety of secondary chronic illnesses. A procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. Over the years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces about spiritual wellness and finding quality of life inside of ongoing illness, I also share health research, awareness information, poetry, memes, art, and this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibro, CFS/ME, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard ;)

Posted on October 24, 2014, in Being Myself, Chronic Pain, Inspiration, RSD/CRPS and tagged , , , , , , , , . Bookmark the permalink. 5 Comments.

  1. wow, 10 years! happy spoonaversary!!

    Liked by 1 person

  2. Congrats on making it 10 years! Choosing to live and fight through your struggles takes great strength, and relying on Him for strength when we feel as though we have none takes great faith. Your positivity is inspiring.

    I hope you were able to find a special spoonaversary gift for yourself 🙂

    Liked by 1 person

    • Awe, thank you SO MUCH friend! ❤ I'm pretty sure I was draaaagged some of the way though… you know?

      Yes, I think I will be getting my first medical alert bracelet- but a cute one. What do you think? Good Spoon-aversary gift?
      Thank you again for your encouraging words and also being an inspiration yourself 😀

      Like

  3. You are so welcome! Hey, it doesn’t matter how…all that really matters is that you made it through and that you’re still fighting!

    A medical alert bracelet sounds like the perfect Spoon-aversary gift! I know that there are lots of cute ones out there, and it would have a very practical purpose as well. Sounds like a win-win to me 🙂

    Hope you’re enjoying your weekend!

    Like

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