RSD/CRPS Challenge Day 2: Time of Diagnosis

A compelling personal story of a young woman who was diagnosed with what is known as the most painful condition to endure- at only 12 years old. This is her recalling her diagnosis.

College on Crutches

Today is Day 2 of the RSD/CRPS Photo Challenge! I’m doing a mix of photos and words/stories for my posts. If you’d like to join in, please do! The challenge is a great way to spread awareness about RSD/CRPS while learning about each other.

Day 2: A picture of you around the time that you were diagnosed with RSD.

IMG_5350

I don’t usually post pictures of my face on here, mostly because I don’t want people I know to find my blog. (I think that would change how free/comfortable I am with being real about everything, so I prefer to stay more anonymous…but I guess people would easily be able to figure out that it’s me anyways simply by reading what I post…) Anyways, for the purposes of this challenge, I’m adding this picture. It was taken in August of 2006, a few weeks after my diagnosis. I was 12…

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About abodyofhope

I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 15 years living with chronic pain, patient advocacy has had a powerful effect on my life through meeting so many remarkable teens, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on. Eight years ago, I became bed-bound from a variety of secondary chronic illnesses. A procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. Over the years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces about spiritual wellness and finding quality of life inside of ongoing illness, I also share health research, awareness information, poetry, memes, art, and this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibro, CFS/ME, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard ;)

Posted on November 3, 2014, in RSD/CRPS and tagged , , , , , , , , , , . Bookmark the permalink. 1 Comment.

  1. Thank you for sharing her story!

    Like

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