Man with pain syndrome seeks relief

This is a real-life story of a young man whose life has been transformed by a hellish neurological condition.

Dutch Godshalk

Originally appeared in The Ambler Gazette | September 24, 2014

Justin Brown, 33, lay on a medical cot in the den of his parents’ Fort Washington home.

Around him are stacks of CDs and DVDs, sports memorabilia, childhood photos, balloons, birthday cards, everything he’d like to see and remember; at the foot of the bed, a television set sits high atop a tower of assorted boxes, nearly touching the ceiling, so that Justin can see it without sitting up or even moving his head. The slightest of movements causes him unspeakable, agonizing pain.

Rick Brown, Justin’s father and full-time caregiver, stands over the cot holding two paper cups; he patiently extracts pills from the cups and feeds them to his son. The medication is dilaudid, one of the most powerful narcotics on the market. Justin says he has to take the drug, at most, six times a day, to keep…

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About abodyofhope

I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 13 years living with chronic pain, patient advocacy has affected my life through so many remarkable young people, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on. Six years ago, I became bed-bound from a variety of chronic illnesses after a procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. In the last 6 years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces, medical/holistic research, and awareness articles, this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibromyalgia, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard.

Posted on November 6, 2014, in RSD/CRPS and tagged , , , , , , , , . Bookmark the permalink. Leave a comment.

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