The Unsung Heroes, a Story of Hope #Calmare

"Warrior" by Marcie Ann | The Unsung Heroes, A story of hope #Calmare #RSD #CRPS

Warrior Painting by Marcie Ann

A nightmare, a gauntlet of choices… of invasive procedures. Pills, so many pills. The looming threat of addiction, as I searched to end what seemed to be endless suffering. RSD: a constant adversary.

Written by Marcie Ann, Guest Contributor.

I asked, where are the heroes and the heroines of this nightmare I’m trapped in? Who will save me from this monster?

Abandonment: As friends, family, and the medical community tire of my seemingly infinite needs. My very existence is a constant reminder for those who love me and those sworn to heal. They too are helpless.

It’s the never ending story; it’s the song that never ends.

And then, in the heart of a man named Giuseppe lays a seed and the courage to nurture it, to fight this relentless beast. And so the heroes and the heroines enter what seems to be a losing battle for for the victims, the characters caught in the RSD nightmare.

Calmare Therapy, and those with the courage, compassion and integrity to stand beside us. And those with the determination to end our suffering enter the storyline, rewriting our never ending story, splashing its pages with hope for a life free from pain and suffering.

My innocence and naivety lost, with overwhelming thoughts of suicide, I set out on what I believed to be my last and final voyage to live.

Standing in a small clinic all the way across the country, 3,000 miles from home. Instead of being faced with the anticipated judgmental glances of typical doctor’s offices, I am greeted with hopeful smiles.

Now, I sit across the desk from Dr. Stephen D’Amato who explains to my skeptical mind the wonders and success of “Scramble Therapy” in fighting RSD. As he spoke, it came to me: HE CAN SEE ME. Although sitting across from him appears to be a healthy woman, this hero knows my enemy. The internal implosion, the woman trapped in the burning inferno. A spark, a small ember of belief ignites in my numb heart.

I walked into the room to begin this Calmare journey. In the corner stands a seemingly insignificant machine. In this machine and in the hands of my hero and heroine, I place my last hope.

This is that moment.

And so nurse Brandi, Dr. D’Amato and me, Marcie Ann with Giuseppe’s machine set the pen to the parchment, charging into the story together. And after 9 treatments, we win.

Calmare isn’t a cure; RSD is a lifetime foe. But because of one man’s dream, and some courageous men and women, I no longer walk alone. I no longer walk as a helpless victim. With Calmare, my hope is alive.

********

Marcie Ann, our guest contributor is involved in the online RSD/CRPS community where she has been an educational advocate for Calmare Therapy ever since her first treatment. Many individuals have received pain relief after hearing Marcie’s story. Marcie and others are advocating to make Calmare more widely available. I am so grateful to include Marcie Ann’s powerful story on my blog. 

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About abodyofhope

I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 11 years living with chronic pain, patient advocacy has affected my life through so many remarkable young people, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on. Four years ago, I became bed-bound from a variety of chronic illnesses after a procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. In the last 4 years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces, medical/holistic research, and awareness articles, this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibromyalgia, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard.

Posted on November 10, 2014, in Guest Bloggers, Medical Research/ Treatments, RSD/CRPS and tagged , , , , , , , , , , , , , , , . Bookmark the permalink. 5 Comments.

  1. Never give up. Marcie.

    Liked by 1 person

  2. Marcie Ann, one of my Calmare patients shared your post with me. What an outstanding article that depicts so clearly the hell you have been through. Your last paragraph is something I have to share with my 850 Facebook friends. Many thanks for sharing your inspiring story.

    Liked by 1 person

    • I’m so honored to tell Marcie’s story on my blog.
      The week before she left for treatment, she was at her lowest point and her pain was at her highest. She was counting the minutes until Calmare- and praying it would help her.
      She came back a changed woman and has been sharing her hope with others since. So honored to share this during CRPS Awareness Month.
      Thank you so much for your comment and also for helping so many patients like Marcie find hope and new life again.

      Like

  3. Reblogged this on calmarenj and commented:
    What an outstanding patient story by my colleague Dr. D’Amato’s patient.

    “Calmare isn’t a cure; RSD is a lifetime foe. But because of one man’s dream, and some courageous men and women, I no longer walk alone. I no longer walk as a helpless victim. With Calmare, my hope is alive.”

    Like

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