Remembering When: poem

Don't Touch | Zazzle/MixyPixie. "Remembering When" #RSD #CRPS Poem about Family and Life with Chronic Pain. #Spoonie

Don’t Touch | Zazzle/MixyPixie

~Remembering When~

I Think About The Time When My
Days Were Mine to Call,
I Didn’t Have To Think About
Meds or Charging At ALL!!!

I Used To LOVE Hugs And being Touched
You See- I Grew Up That Way-
But NOW When People Come Near Me
I Want To Shy Away

I Used To Be The Life Of The Party
Never Sitting Still For A Moment
NOW I’m A Stranger Even In My Own Body
And I Can’t Even Remember How I Got In It!

Of Course I Am Happy To Be Alive
I Still Have So Much To Give
I Just Want A Life That Doesn’t Hurt So Much
Just To Wake Up And Live

-written by Kelly Lynn Edholm


Guest Contributor, Kelly Lynn has been surviving Complex Regional Pain Syndrome/RSD since 2007 along with other health challenges. She is a mother, a grandmother, an artist, teacher to the disabled, and places her faith in God first in her life. The “charging” she is referring to is her Spinal Cord Implant which is meant to help reduce pain. Thank you so much Kelly for expressing so clearly what many of us feel. 

This is the last of the Nervember Series. Visit Categories to see all of the RSD/CRPS Awareness posts from this past month.


About abodyofhope

I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 13 years living with chronic pain, patient advocacy has affected my life through so many remarkable young people, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on. Six years ago, I became bed-bound from a variety of chronic illnesses after a procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. In the last 6 years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces, medical/holistic research, and awareness articles, this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibromyalgia, CFS/ME, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard.

Posted on November 30, 2014, in Poetry, RSD/CRPS and tagged , , , , , , , , , , , , , . Bookmark the permalink. 3 Comments.

  1. Thank you for sharing Kelly’s poem. So many can relate to her wonderful prose.

    Liked by 1 person

  2. Thank you Kathleen. I just love this. When I read it, I cried. Especially the part about growing up being affectionate with family and now not being touched. I hope people can understand that part of the condition better through her words.


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