Fire Brick Road: poem

~Fire Brick Road~

Down this yellow brick road of fire and pain

There are things that you’ll learn and there’s knowledge you’ll gain.


You learn people prefer when you’re funny instead

Of telling the truth about how bad things get.


You’ll figure it out that folks get annoyed

When you tell them you’re hurting when they’re feeling joy.


If someone asks about your health facts,

You must pair each truth with a blessing you have.


Otherwise, they will think that you are pathetic,

Even though they may really seem sympathetic.


Make sure to be cautious about each complaint,

You’re “sick” now so people expect you to act like a saint!


A bit more advice as you walk the path:

You’ll subtract a few friends, so learn some quick math.


You’re just not fun like they remember,

But hang on to the ones who will love you forever.


If you are grateful, then you will do better

The things that are negative really can fester.


If someone else tries to meet a need,

It’s best to say “thanks!” and learn to receive.


This yellow brick road of fire and ice

Has more stuff like: Doctors, and money, and guilt… OH MY!


But on this road you aren’t alone

God’s with you, and others who limp it in toe.


So when you are ready just reach on out,

Someone will be here; there’s always traffic on this route.

-by A Body of Hope


Yellow Brick Road painting| by Artist Andrea on Etsy | "Fire Brick Road Poem" #RSD #CRPS Nervember Invisible illness. chronic illness. Spoonie. Wizard of Oz. Tongue and cheek poem about how to live with chronic pain. #abodyofhope

Yellow Brick Road | by Artist Andrea

Thank you to Artist Andrea for allowing her awesome Yellow Brick Road painting to be featured. Please go buy one of her unique original pieces from Etsy. Many of her paintings have the spirit of Frida Kahlo. Check them out!

About abodyofhope

I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 15 years living with chronic pain, patient advocacy has had a powerful effect on my life through meeting so many remarkable teens, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on. Eight years ago, I became bed-bound from a variety of secondary chronic illnesses. A procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. Over the years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces about spiritual wellness and finding quality of life inside of ongoing illness, I also share health research, awareness information, poetry, memes, art, and this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibro, CFS/ME, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard ;)

Posted on December 5, 2014, in Chronic Illness, Chronic Pain, Disability, Humor, Poetry, RSD/CRPS and tagged , , , , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink. 15 Comments.

  1. Its a great poem. It’s not easy these days to find a poet who has the ability and patience to write a poem that has rhymes as this one. That is one thing that gives it beauty but very difficult to come by.

    Liked by 3 people

    • Why thank you! I really enjoyed writing this one- it was fun, so I appreciate your comment very much 🙂
      I don’t think poetry needs to rhyme, of course, but following the tradition of poetry, I like the idea of having some wordplay development inside of the structure. Most of all though, my poems flow from within me, making me laugh or cry or smile. If they have wordplay, it’s a bonus 🙂
      It’s lovely to find another who notices little nuances in structure like that. Thank you for taking the time to visit and comment!

      Liked by 2 people

  2. Thanks so much for featuring my OZ painting! & lovely poem too – love it when art inspires and vice versa! 🙂

    Liked by 2 people

    • Artist Andrea,
      Thank you! I’m very excited to feature your painting today! Your bright beautiful piece makes me smile and tells a story. I know my readers will enjoy it as much as I do. Thank you so much for permitting your awesome work to light up the hearts of those who might be struggling today. You have so many wonderful works in your shop. I’m so glad we have found each other 🙂

      Liked by 1 person

  3. Thank you for this wise, yet light of heart, poem. Living with chronic illness truly sucks, but a sense of humor helps, without doubt. Faith, too, helps — in yourself, in those who love you, in the natural world, in God. In whatever it is that can bring lightness and beauty into your world. (((hugs)))


  4. You are a very talented poet! Says exactly how so many of us feel. Thank you!


  5. Dear of you to handle this tough quandary with humor. Yes, the truth is we do have to be judicious with what and how much we share. I shed the cynicism years ago. I always say everyone has his, her own load. I’m grateful if anyone cares to try and help shoulder mine a bit but I can’t go around expecting.


    Liked by 1 person

    • Diana,
      Thank you so much for your thoughtful comments. I always appreciate them as I love your writing on your blog.
      You’ve hit on one of those challenges all of us with chronic illness comes to eventually: Hoping others we love will understand our struggles…but in the end, we have to face the reality that we each have our unique journeys to traverse.
      It is lovely, however to find those kindred spirits who we have things in common with along the way 🙂


  6. Well said! Your poem pulls in so much of what we go through and expresses it in such a beautiful way.

    Liked by 1 person

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