How to Read a Newspaper

How do you feel when you hear that someone with your same condition has gotten well?
This blogger explores the honest thoughts and feelings she and so many of us experience when a fellow Spoonie recovers.
I hope you enjoy reading this post as much as I did:

Tips for ME

Scenario: we read a newspaper article about someone who’s found an instant cure from (insert Spoonie condition of your affliction) after a relatively short amount of time. Our initial reaction probably includes some combination of these thoughts:

  • They were never ill in the first place.

  • They were ill but it’s not true that they are now well.

  • They can’t have had what I have.

  • It’s true that they recovered but for a different reason.

  • It’s great that they found a way to get well.

  • If I try that will it work for me?

  • I’ve been ill much longer, I’d know if that works.

  • Why have I been ill so long? It’s not fair.

  • The newspaper has got it wrong.

I think these reactions could do with some unpacking.

They were never ill in the first place.

After we’ve got over our initial reaction this thought is probably the easiest to kill…

View original post 1,425 more words

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About abodyofhope

I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 13 years living with chronic pain, patient advocacy has affected my life through so many remarkable young people, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on. Six years ago, I became bed-bound from a variety of chronic illnesses after a procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. In the last 6 years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces, medical/holistic research, and awareness articles, this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibromyalgia, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard.

Posted on July 16, 2015, in Alternative Treatments, POTS/Dysautonomia, Reblogs and tagged , , , , , , , , , , , , , , , , . Bookmark the permalink. Leave a comment.

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