How to Read a Newspaper

How do you feel when you hear that someone with your same condition has gotten well?
This blogger explores the honest thoughts and feelings she and so many of us experience when a fellow Spoonie recovers.
I hope you enjoy reading this post as much as I did:

Tips for ME

Scenario: we read a newspaper article about someone who’s found an instant cure from (insert Spoonie condition of your affliction) after a relatively short amount of time. Our initial reaction probably includes some combination of these thoughts:

  • They were never ill in the first place.

  • They were ill but it’s not true that they are now well.

  • They can’t have had what I have.

  • It’s true that they recovered but for a different reason.

  • It’s great that they found a way to get well.

  • If I try that will it work for me?

  • I’ve been ill much longer, I’d know if that works.

  • Why have I been ill so long? It’s not fair.

  • The newspaper has got it wrong.

I think these reactions could do with some unpacking.

They were never ill in the first place.

After we’ve got over our initial reaction this thought is probably the easiest to kill…

View original post 1,425 more words


About abodyofhope

I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 13 years living with chronic pain, patient advocacy has affected my life through so many remarkable young people, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on. Six years ago, I became bed-bound from a variety of chronic illnesses after a procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. In the last 6 years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces, medical/holistic research, and awareness articles, this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibromyalgia, CFS/ME, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard.

Posted on July 16, 2015, in Alternative Treatments, POTS/Dysautonomia, Reblogs and tagged , , , , , , , , , , , , , , , , . Bookmark the permalink. Leave a comment.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Tea With Jennifer

Join me in a cup of inspiration!


I am so glad you have chosen to visit my website and I hope you will continue to come back to read more! You will see that I do believe that a positive attitude can make a huge difference! I truly hope that my website will reassure others that they are not alone with their battles; my goal is to help others!

Miss Diagnoses

Life with assorted ailments

Health Breakthroughs

Pain Management Specialist in San Diego & La Jolla

Pain Specialist treating Intractable Pain & Treatment Resistant Depression


Sleep deprived / Council landlord & neighbour abuse / legal action /; Kent, England

Nosy Parker Blog

musings of a curious creative

Susan Sleggs

Reflective observations to inspire conversation

Dr Kent Herbal

High Quality Organic Herbal Supplements

The Adventure, No The Unfair Journey of A 25 Year-Old In A 80 Year-Old's Body

Not Just A Mom Blog, I'm A Real Person With Real Problems. My Health Issues, My Families Health Issues And My Experiences With It All.

Doss Doc's

Comedy Blogger Extraordinaire

Young, Hip and Bionic

What it is like to go through hip replacements at 30 years of age

Jo Ann Maxwell

How a diagnose of a chronic disease turned my world upside down.

Life with an Illness

Sharing my chronic illness journey, while helping others. I spread awareness, love, and positivity along the way!♡

My Instruction Manual

I never learned how to live, not really. So I decided to write a guidebook, an instruction manual” for how to be happier, healthier and more productive.

A Heart For Chelle

A raw and honest account of life on the heart transplant wait list

%d bloggers like this: