Caregiver Appreciation Day, 2015

Thank you for trying to understand chronic illness. #Spoonie #caregiver

Today, November 13th is Caregiver Appreciation Day.

November is Caregiver Awareness Month. If you have a chronic illness or disability, you have carers. Even if you are not confined to a bed or home-bound, you are still receiving support from someone whether it be a spouse, parent, family member, friend, professional caregiver, online support, or your physician. Today, make sure your carers know that you appreciate the big and small things they do to make you more at ease physically or emotionally.

If you are a carer and feel overwhelmed at times, please know that you are not alone. Below is a quote from the book, The Mindful Caregiver: Finding Ease in the Caregiving Journey:

“Many caregivers share that they often feel alone, isolated, and unappreciated. Mindfulness can offer renewed hope for finding support and value for your role as a caregiver…It is an approach that everyone can use. It can help slow you down some so you can make the best possible decisions for your care recipient. It also helps bring more balance and ease while navigating the caregiving journey.”
Nancy L. Kriseman

If you are being cared for by your spouse or vice versa, I highly recommend reading the book, Healing Together:

“In a relationship between two people who may be reeling after a trauma, a commitment means that they are taking an active and involved role in addressing the situation they are facing. It also implies a commitment to each other during the recovery of trauma- an understanding that no matter how rough it gets, the other will be there. You intend to face adversity together, with a strong commitment to each other and the future.”Healing Together: A Couples Guide to Coping with Trauma and PTSD

If you are supporting someone through a chronic illness or disability, please check out one of the groups on Facebook to find support and to have that crucial outlet for yourself. Caregivers can feel as isolated as the person they are caring for at times, but don’t know who they can talk to. You are not alone, and there are people to share your burdens with.

We have so many events to raise awareness for our different diseases and create unity among people with illness, but we should also raise awareness for the plight of caregivers. You are so beloved to us. You deserve a parade! Thank you for being our silent partners on the journey.

Today we celebrate you.

If I Ask You for More: poem about the caregiver/patient relationship

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About abodyofhope

I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 11 years living with chronic pain, patient advocacy has affected my life through so many remarkable young people, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on. Four years ago, I became bed-bound from a variety of chronic illnesses after a procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. In the last 4 years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces, medical/holistic research, and awareness articles, this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibromyalgia, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard.

Posted on November 13, 2015, in Caretaker and tagged , , , , , , . Bookmark the permalink. Leave a comment.

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