Gift Ideas for people with Dysautonomia, POTS, and CFS

POTS gift ideas

If you know someone with POTS, EDS, Gastroparesis, or Hypotension, Orthostatic Intolerance, fainting disorders, bowl disruption, Chronic Fatigue Syndrome, or a thyroid disorder, I’ve got you covered with these gift suggestions! *Starred items were created by disabled entrepreneurs. 


 

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People with Autonomic Dysfunction and stomach disorders tend to have very dry skin. Personally, I also have extra sensitive skin because I hit the genetic jackpot. A deep moisturizing product with collagen or an anti-aging night mask helps soak into that dehydrated skin and would be a great gift. Try Mary Kay’s Extra Emollient Night Cream at only $14, which has been a top seller for decades. My mother used it from the time I was a little girl and she has always had beautiful skin. My sister and I love it, so it’s one of those heirloom cosmetics. I’m passing it on to you! Or like Keihl’s Deep Moisturizing Balm ($26.50) which has been plumping up faces since the 70’s. Both are classics.


 

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Medical Alert Italian Charm Bracelet GadowJewely8 Ebay

I’ve been scouting medical alert bracelets for about a year now, and these are my top favorites. These medical ID Italian charm bracelets are available on Ebay for between $20-$30, and individual links are sold in a variety of conditions for $5-$10 each. Links can be custom-made if you want to add a new medication, and links can be removed easily to fit if you lose weight. I also love the idea that you can mix your POTS charm next to a sparkly skull charm to suit your personality and keep it fun.

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USB Woven Alert Bracelet

The new trend is USB bracelets and they’re very cool because, if you are like me (and many with the above disorders) and have complex medical issues that require more explanation than a straight-up name on a tag, this is what you need if you’re unconscious, in a hospital setting, and cannot advocate for yourself. I like this woven usb bracelet from A Delightful Gift as you can have it made in your condition’s awareness colors for $29.95. Good for the guys, too!

This adorable Medical ID Bracelet from My ID Square combines the charm of traditional ID charm bracelets with modern technology. The QR code can store your scannable data, while you can add your medical ID charms onto the bracelet. I like the instant access of the ID charms for an EMT situation, plus the addition of the data tag allows for access to your information. The shop has wide variety of bracelet styles and charms. One problem, now I can’t decide which ID bracelet I want!


 

One thing I learned when I entered the POTS world from the Chronic Pain community is that POTSies have the lockdown on technology! Since you can get a quick-read blood pressure cuff at any drug store, I’m going to try and kick it up a notch. This wristband from Withings reads heartrate, blood pressure, and blood oxygen level, along with tracking steps, distance, calories burned and has a sleep companion which all syncs with your mobile. It comes in Dysautonomia blue as well as black; price range on Amazon, $93-$250. If this works as well as the company claims, that is one heck of a Dysautonomiac invention!

I learned Biofeedback 11 years ago to help me manage pain, stress and sleep. Four years ago, when all the crazy Dysautonomia and POTS symptoms undid my body, I started whipping out my Biofeedback techniques like my life depended on it (well, it has). Learning to have better control over typically automatic responses like breathing, heart rate, blood flow, circulation, and blood pressure are very challenging, but can be so helpful in conditions affecting the heart, nervous system, or in conditions which interrupt sleep.

This amazing Biofeedback and Neurofeedback smart phone app was made by a little known group you might know called THE US DEPARTMENT OF DEFENSE! The app can monitor respiratory rate, skin responses, temperature changes, as well as brain waves. Check out more about this FREE app here at Neurogadget.com which includes links to purchase the biosensor devices for your smart phone. Good job, America!


 

I can’t say enough about compression socks. And now, they are finally cute! You can even find printed compression leggings. They help us keep the “blood pooling” or edema to a minimum by encouraging circulation. Compression stockings displace blood from the lower extremities and squeeze it into the upper body where we are desperately lacking. It also lowers vascular issues in the legs and helps prevent strokes. This is one pair of socks that earn their keep! Check more cute compression socks links here on my last gift guide for people with Chronic Pain.


 

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Gourmet Salt Sampler

If you know someone with Dysautonomia, POTS, or Hypotension, then you know we are a little obsessed with our salt intake to raise our blood pressure. For the holidays, turn your loved one into a connoisseur of specialty salts by allowing them to sample 6 different types of sea salts from around the world. Purchase through Amazon, made by The Spice Lab, for only $29.95. They arrive in a wooden stand, nestled in a kraft gift box. Or, spice up your loved one’s pallet with specialty seasoned salts. SaltWorks.com creates 5 unique salt blends like Merlot salt and black truffle salt in their Fusion Flavored Salt Sampler, $26.95. Mmmm, pardon my drool!


 

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Fellow Dysautonomia fighter and advocate, Suzanne Stewart makes fabulous custom awareness jewelry to your desire. A portion of her earnings go to help chronic illness organizations because her rapidly beating, pace-maker equipped heart is also full and generous! Take a look at her website, *Support in Jewerly, and order something pretty for the chronic diva in your life.


Dr. Lam, a leading expert on Dysautonomia, has developed Tai Chi for Rehabilitation, $24.95. I first learned about Tai Chi for Dysautonomia from POTS and chronic pain blogger, Elle and the Auto Gnome who attributes Dr. Lam’s Tai Chi in part for her improvement. The DVD’s can be adapted to a sitting position or even (as I’m learning) a flat position, thanks to my cardiac rehab therapist. [If you give a gift of “healing” to a friend with a chronic illness, it’s best to include it in addition to her main gift. Otherwise, it may send a negative message to us that we aren’t doing enough for our health in your eyes.]


Artist, Sarah Allegra has developed this magical *2016 Calendar with Red Bubble, depicting her favorite images. Sarah Allegra is not only a provoking photographer, she also suffers from Chronic Fatigue Syndrome/ME/SEID which always influences her art. She is an activist, raising awareness through her blog, Mythic Pictures, as well as through her expressive images which speak volumes. If your loved one has severe fatigue associated with her disorder, often artwork can say so much more than words.


 

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“It’s like 10,000 Knives when all you need is a Spoon” *Awareness Tee’s on Zazzle.com

Other awesome gift ideas include: a nice juicer/blender $30-$200, electric toothbrush $5-$200, Funny original Awareness tops $20-$30 on Zazzle and Cafepress, Whole Foods gift card, Amazon gift card, vitamin shop gift card, massage gift certificate, electrolyte drink drops, or ear plugs.

As you are shopping for your friend, consider that she has to lay down A LOT due to chronic daily fatigue and because of many other symptoms causing falling or potentially fainting when she tries to get up and around. Anything cozy, things she can do laying down, and compact items she can keep near her bedside are all ways to play the chronic shopping game. Thank you for playing! Most of all, your solid presence in your loved one’s life is already a win as far as they are concerned. Just so you know, you are the best! Thank you for visiting,

Happy Holidays!


 

Gift Ideas for chronic illness

Find out what my gift-giving NO NO’s are when shopping for your chronically ill/ disabled loved one here.

 

 

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About abodyofhope

I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 13 years living with chronic pain, patient advocacy has affected my life through so many remarkable young people, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on. Six years ago, I became bed-bound from a variety of chronic illnesses after a procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. In the last 6 years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces, medical/holistic research, and awareness articles, this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibromyalgia, CFS/ME, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard.

Posted on December 17, 2015, in CFS/ME/SEID, POTS/Dysautonomia, Uncategorized and tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink. 8 Comments.

  1. “Because I hit the genetic jackpot …” very droll. Sadly spot on, of course.

    I think it’s time for me to try the compression socks idea.

    Liked by 1 person

  2. wow you are just so awesome and amaze me all the time!! This was so thoughtful of you to do to help everyone out! You are the best, Love you girl..

    Like

  3. You put so much thought and effort into these great posts. Such generosity is so inspiring, and so appreciated. I hope you have a wonderful holiday season. 🙂

    Like

  4. What a remarkable gift guide! I understand too well the life of chronic illness, so that gift guide I could relate to. But I confess to being clueless to the needs of those with POTS and Dysautonomia. So I was both educated to the needs, and impressed with the amazing products on the market to help with those needs. Great job, Mary!

    Liked by 1 person

    • I’m just now seeing your comment as my comment thingy hasn’t been cooperating.
      Thank you, Jane!! That was the best compliment I could have received for this! I’m so glad it was educating, especially. I tried to sneak some info in there among the products 😉
      My mom bought me the salt tubes featured here and they are delicious! Thank you so much for reading, and I apologize for getting back to your wonderful comment so late.
      I hope you are having a good day today, Mary

      Like

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