Reblogged from Holding Patterns and High Tea


​I’m not doing well right now. I worry about dying, asthma or an infected tooth. I worry about leaving my family alone. I worry about being a burden-dragging people down im so tired of fighting so hard to repeatedly have it come to nothing I worry I’m giving up, burning out, or burning up I […]

via Liminal — Holding Patterns and High Tea

About abodyofhope

I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 15 years living with chronic pain, patient advocacy has had a powerful effect on my life through meeting so many remarkable teens, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on. Eight years ago, I became bed-bound from a variety of secondary chronic illnesses. A procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. Over the years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces about spiritual wellness and finding quality of life inside of ongoing illness, I also share health research, awareness information, poetry, memes, art, and this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibro, CFS/ME, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard ;)

Posted on July 26, 2017, in Uncategorized. Bookmark the permalink. 6 Comments.

  1. Please focus on living. We all could be dead in a minute, and hour, a month or in ten years. Dead is forever, living is now. Hugs.


    • This was shared from a blogger with a severe chronic illness. Thank you for commenting.

      Liked by 1 person

      • I am about to write a blog on mentoring and would love to reach people who are feeling hopeless. We all have found things that work and things that do not. I want to encourage people for follow bloggers who are up lifting and are willing to mentor or spend time listening and doing what ever might help.. Blogging is a gold mind area for this. All anyone has to do is follow someone who is willing to spend time with them sharing and listening. I find Skype messaging a great place to mentor more privately. I will cover that option. I have mentored in the past and have had mentors who have helped me in many ways. We all have the mentoring gene in us. It doesn’t take a lot of time. Occasional it will but usually issues and insight and knowledge is gained and the problem disapears or is managable. I hope you will talk about this as well on your blog. Repore needs to be built but readers can check out blogs and see if they trust or need or are interested in what the blogger has to say. The areas of mental health and parents are in need of mentors. If you can help get me in contact with the blogger you spoke of I would love to stand in her corner and lisrten and maybe help her see hope.

        Liked by 1 person

        • Good morning,
          I absolutely love your idea to discuss how people can get more involved as mentors, and in mentorship programs. There are so many, and there’s an abundance of great training available as well. It’s so wonderful that you care about others, and want to help them to give back. Serving one another is one of the most important ways we can heal. I’ve been mentoring and doing patient advocacy in the chronic pain community for about 12 yrs, but I haven’t seen blogs as mentorship programs. That would be a special outreach for your blog I look forward to.
          I’ve discussed this here significantly in the past, but use other methods as outreach. Every type of social media is awesome for connecting with people on a personal level. Why shouldn’t wordpress be any different? All the best as you go forward touching lives!

          To get to any page I’ve reposted pn my page, click the blogger’s link link, or hit the “read more” button.

          Liked by 1 person

  2. Well the turttle stuck her neck out and the blog has been published on my thoughts on mentoring. Lets see if it gets some traction. There are so many ideas that are not shared. Many times when I have read something I have thought,” that is so simple and apparent”. Thanks for your encouragement. Kind words are a motavation for all of us. I write because it has turned out to be great therapy for me and helps keep me level. So I selfishly write. And if it touches someone and helps that is an added cherry on top of the banna split. 😉

    Liked by 1 person

    • I suppose all writers and artists are selfishly passionate! Lol We have to keep expressing ourselves. But it’s also up to us how we use our talents.
      I look forward to reading your new post! You are using your superpower for “good instead of evil” 😉 😉

      Liked by 1 person

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