Doing ‘Well’ when You are Chronically Ill

This chronic illness sufferer hits the nail on the head. This is life for so many of us, on our very best days sometimes even the hope of “what if” gets us into trouble. We may live with different conditions, but we face the same battles. I hope others are comforted reading this, being ensured they are not alone.
I hope you are “doing well.”

Holding Patterns and High Tea

My health has been doing relatively well lately. That is to say, I am not in an illness or pain flare currently. But what does that even mean for me and others with chronic health or pain conditions?

For me, it means I may feel “ok” as long as I am sitting and doing quiet non physical things. It also means that simple activities like sitting up from laying down, standing up, or walking from one room to another doesn’t give me an asthma attack.

However even when my baseline health is slightly improved I still have to be careful. Just because I can walk slowly doesn’t mean that cleaning sprees or even small organizational tasks won’t cause me asthma attacks and pain flares. I know at this point that keeping a decent base line of health, that allows me any sort of quality of life requires I not push…

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About abodyofhope

I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 15 years living with chronic pain, patient advocacy has had a powerful effect on my life through meeting so many remarkable teens, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on. Eight years ago, I became bed-bound from a variety of secondary chronic illnesses. A procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. Over the years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces about spiritual wellness and finding quality of life inside of ongoing illness, I also share health research, awareness information, poetry, memes, art, and this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibro, CFS/ME, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard ;)

Posted on September 6, 2017, in Uncategorized. Bookmark the permalink. 2 Comments.

  1. i get your blog.i am disabled have m.e .migraines .bladder/bowel problems .people never see the every day effects .i take part in a lot research .have a lot allergies .i do a blog
    http://mark-kent.webs.com

    Like

  2. I’m glad to have you, Mark. Very sorry to hear about your physical struggles.
    Do you have Dysautonaumia as well? It seems to be a nasty beast that comes with ME. I hope to see you again, have a good night. Spoonie hugs

    Like

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