The HIV/AIDS Crisis changes Healthcare for Chronic Illness Patients

World Aids Day 2017

So much progress has been made for a killer autoimmune disease/infection/virus that was once surrounded by so much prejudice and misinformation.

Healthcare was far out of reach. Doctors did not seem to understand. The public turned their backs. 

Meanwhile men, women, children, and infants were infected, without care, suffering and passing away. 

So much has changed in a relatively short period of time. Still, there’s a long way to go, especially internationally.

Maybe you have a chronic pain condition and feel as though doctors, society, and family have singled you out as a drug addict. Maybe you’re being denied treatment. We continue seeing our own friends in pain pass away due to lack of care… Or if you’re a rare disease survivor and are feeling hopeless about the healthcare situation at hand, please keep this hope in front of you.

If the HIV/AIDS community could create a revolution for themselves in the midst of such a horrific crisis, please keep hope alive that we can also. But we can only do change the system if we stay united.

#worldaidsday #hivawarenessday #raredisease #rarediseaseday #sicklivesmatter

#yourstoryisnotoveryet 

About abodyofhope

I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 15 years living with chronic pain, patient advocacy has had a powerful effect on my life through meeting so many remarkable teens, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on. Eight years ago, I became bed-bound from a variety of secondary chronic illnesses. A procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. Over the years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces about spiritual wellness and finding quality of life inside of ongoing illness, I also share health research, awareness information, poetry, memes, art, and this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibro, CFS/ME, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard ;)

Posted on December 2, 2017, in advocacy, Hope, Uncategorized and tagged , , , , , . Bookmark the permalink. 3 Comments.

  1. You are right, HIV has also been one of these diseases that were once hopeless for the victims. And now things have changed so much. I know they are even trying to find out if diseases like ME( chronic fatigue syndrome) work in similar ways through unknown virus damage victims suffered by looking into the HIV model. Just like other therapies for renown illness will one day trickle down to us once they figure more things out for the immune system, the central nervous system and other parts of the brain.
    Thanks for the reminder 😘

    Liked by 1 person

  2. horrorkablamdude666

    Watch this as it shows the emotions we go through

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

A Complex Life

Living with Complex Regional Pain Syndrome

Get More Resilient

Our resiliency has limits, but we can always become more resilient.

My Life: Beauty Love and Chaos

Blog, Poems and Short Stories by Becky Allen

DeltaLifes.com

HEALTHY LIFE & SUCCESS

Tea With Jennifer

Living Grace, one day at a time...reflections on life, love & laughter

Fightmsdaily

Living life with a chronic illness is definitely not easy. But I do my best to push through all the barriers this illness puts in front of me! In my heart and mind, I believe maintaining a positive outlook on all situations in life will carry us through to much better times! I hope you find the information that I provide both helpful and inspirational!

Miss Diagnoses

Life with assorted ailments

Pain Management Specialist in San Diego & La Jolla

Pain Specialist treating Intractable Pain & Treatment Resistant Depression

Twilight

( writer )

Survivors Blog Here

Keep Moving Forward

#OneGoodThing Daily

Surprising silver linings in caregiving, food, art, style, travel, and more!

Sue Spitulnik

Writing, Sewing, Travel, and Thoughts

Doss Doc's

Father Figure for Hire

%d bloggers like this: