An Open Letter to the Doctor Who Gave up on Me
I know I’ve already published 2 new blog posts today, but I have to share this incredible post by a newer blogger I’ve been following. I know everyone with a chronic illness will relate.
Life with an illness
Before I start, I want you to know I’m not even mad. You’re not the first or probably the last to turn over my case. The moment that you gave me the pity look, and said “you will never get better, you will have a feeding tube the rest of your life, and I can’t help you.” Tears immediately welled up in my eyes, and my stomach sank to my feet. That was the worst feeling, when you gave up on me.
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I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 15 years living with chronic pain,
patient advocacy has had a powerful effect on my life through meeting so many remarkable teens, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on.
Eight years ago, I became bed-bound from a variety of secondary chronic illnesses. A procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. Over the years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces about spiritual wellness and finding quality of life inside of ongoing illness, I also share health research, awareness information, poetry, memes, art, and this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibro, CFS/ME, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard ;)
Posted on January 7, 2018, in Uncategorized. Bookmark the permalink. 2 Comments.
Thank you so much for reblogging!!! 💛
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You’re welcome! Very well written and so powerful!
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