Bio: I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 13 years living with chronic pain, patient advocacy has affected my life through so many remarkable young people, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on. Six years ago, I became bed-bound from a variety of chronic illnesses after a procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. In the last 6 years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces, medical/holistic research, and awareness articles, this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibromyalgia, CFS/ME, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard.

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  1. I love your writing and have nominated you for a blogging award: http://wp.me/p49Ewg-So. Thank you for your encouragement.

    Liked by 2 people

  2. WOW! Thank you so much, Mark! I am truly humbled and grateful that you thought of me for this and for your inspiration in your writing. I’m excited πŸ™‚


  3. I nominated you for the One Lovely Blog Award. Thanks for being awesome πŸ™‚ Come see what I have to say about you, and to learn the rules if you want to participate.


    Liked by 2 people

  4. Are you kidding me???!! I literally JUST posted a nomination for YOU, HA! This is the best blogging thing ever πŸ˜€
    Thank you so much!!! I’m totally honored and touched, and also really quite tickled. I’m off to post your notification right now ❀ ❀


  5. Your story is an truly inspiring. We must get you out there. You could mend a few broken hearts, heal a few lost souls, or even find a cure … all with your words of strength, courage, and wisdom. This song is for you! Hugs and Blessings!


  6. I will keep this in MY HEART. And I will say THANK YOU Karma for being an encouragement and a source of sunshine where there are many clouds.
    This is a gift today. You are a gift.
    I have missed India’s music. Thank you for posting one with the lyrics for me.
    I’m excited to have a new friend in you πŸ™‚


  7. Hi, thanks for the kind words on my RSD/CRPS story. Please contact me directly at godshalkd@gmail.com regarding linking up to spread the word on Justin’s ordeal.

    Liked by 1 person

  8. So glad we found each other’s blogs! You are inspiring!


  9. Thanks so much for visiting my site and choosing to follow along. You are doing Light work here.


  10. Sincere thanks for the “One Lovely Blog” award. I have carried out the steps. πŸ™‚


  11. Thanks for the inspirational blog. I nominated you for an award and just realised you already have it on your page. Well better twice than never! https://sailingpenguin.wordpress.com/2015/04/03/feeling-honoured-2nd-award-today-the-liebster-award-discover-new-blogs/

    Liked by 1 person

  12. Hi! πŸ™‚ Love your blog! I’ve nominated you for the ENCOURAGING THUNDER Award. https://sexyachymoody.wordpress.com/2015/05/08/encouraging-thunder/


  13. As a fellow chronic pain sufferer, oh how I love what you are doing here on wordpress! So much so, that I am nominating you for the Versatile Blogger Award. Mazel Tov! Enjoy and have at it! I will keep on reading. You rock! Hope today is a good day for you!

    Liked by 1 person

    • Thank you for the nomination, Lisa! That’s so cool of you to introduce me to your readers. I’m totally honored. I love your page. Because I grew up Christian, my parents were very big on teaching us about Judaism, so many of the words you teach are familiar and heartwarming to me ❀
      Wishing you strength and low pain to make it through this winter.

      Liked by 1 person

  14. I broke my pelvis giving birth to my third child. About a year later, I had my pubic bone removed and plates and rods installed to hold my pelvis together. I was in a wheelchair for six months after that one. Eight very long years later, I had another surgery, this time on my back. A discectomy/laminectomy, after which i was in a back-brace for another six months. I am one of the lucky few who can count my surgery successful (which means I only have intermittent pain on a scale of below 5 USUALLY, other days its a 12). I’m so sorry you have to go through this and I understand the strain that it puts on your everyday life. I wish you all the best. If you are interested I have a facebook group I’m very proud of (https://www.facebook.com/groups/206261796054436/) called Suffering in Silence and we would love to have you. Blessed be.

    Liked by 1 person

  15. “Under the water, there are pearls”… so beautifully put! God bless you on your journey and here’s wishing you pain-free days!

    Liked by 1 person

  16. You are an inspiration. I so admire how you pull it together. I am rooting for you! The posters are great. Keep going! Hugs, Lori

    Liked by 1 person

  17. Good morning! A while ago, you answered an open invitiation to write a guest post about mental illness for my blog. If you are still interested (or even if you are not), please let me know. Email me at otterlover58@gmail.com
    Have a great weekend!


  18. Hi Mary,
    I have nominated you for the Blogger Recognition Award. You are under no obligation to participate but if you would like to check out this post where I nominated you. https://theinvisiblewarrior.com/2016/07/28/the-blogger-recognition-award/

    Thank you for your writing… I always look forward to you posts! -Kelly


  19. Hello I’m Niamh, I’m 16, an advocate and I run an organisation. My organisation is called YoungPeople ChronicIllnesses, a few chronically ill girls share our journeys, raise awareness and tell the stories of others. This is done by capturing the good and bad times through Instagram.
    We have a project called Spoonie Spotlight where we share the stories of people with chronic illnesses. We cover peoplenof all kinds with all types of illnesses.
    I’m contacting you to ask if you’d like to share your story to help raise awareness! I personally feel like personal experiences are more powerful than facts because each persons journey with any issue is different. If you’re interested please message me back and I’ll send further details.

    Liked by 1 person

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