About Mary

“Hope is the most important aspect in surviving unspeakable pain and illness. It’s what takes us from suffering to surviving.”

Mary is a bed blogger, pain patient advocate, activist for disability rights, and art therapy proponent.

Sixteen years ago, she was diagnosed with the neurological disease, Complex Regional Pain Syndrome at age 22.

Mary now also lives (very quietly) with daily Chronic Migraine, intractable Spinal Headache, Cluster Headache, Occipital Neuralgia, Pseudo Tumor cerebri, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Fatigue, sound and light sensitivities, and Cerebrospinal fluid leaks.

Though she lives her life from a horizontal position, she keeps herself busy. She founded the hope-based Facebook support groups Living with RSD, and the creative corner for disabled artists, Chronically Inspired. She loves raising awareness for chronic illness issues on her blog, aBodyofHope. She studied Psychology and Professional Writing in college, and has been grateful to utilize her experience to serve the chronic pain community.

“I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface.

Over the past 16 years of living with chronic intractable pain, patient advocacy has had a powerful effect on my life. I’ve met so many remarkable teens, women and men: SURVIVORS. These individuals are HOPE personified. I hope to honor them in the same spirit they have encouraged me to press on.

Nine years ago, I became bed-bound and homebound when an experimental procedure meant to relieve my long time pain condition went very wrong. Ever since, I live with a variety of chronic illnesses along with spreading of the original CRPS.

Over the years, my entire life has changed. I have changed, but I am still striving to live my best life, and find God’s voice the quiet. Along with sharing inspiring pieces about spiritual wellness and finding quality of life inside of ongoing illness, I also share health research, awareness information, poetry, memes, art, and incredible pieces written by survivors who have much more insight than I.

Welcome to A Body of Hope, and thank you for visiting!”


  1. I love your writing and have nominated you for a blogging award: http://wp.me/p49Ewg-So. Thank you for your encouragement.

    Liked by 3 people

  2. WOW! Thank you so much, Mark! I am truly humbled and grateful that you thought of me for this and for your inspiration in your writing. I’m excited πŸ™‚


  3. I nominated you for the One Lovely Blog Award. Thanks for being awesome πŸ™‚ Come see what I have to say about you, and to learn the rules if you want to participate.


    Liked by 3 people

  4. Are you kidding me???!! I literally JUST posted a nomination for YOU, HA! This is the best blogging thing ever πŸ˜€
    Thank you so much!!! I’m totally honored and touched, and also really quite tickled. I’m off to post your notification right now ❀ ❀


  5. Your story is an truly inspiring. We must get you out there. You could mend a few broken hearts, heal a few lost souls, or even find a cure … all with your words of strength, courage, and wisdom. This song is for you! Hugs and Blessings!

    Liked by 1 person

  6. I will keep this in MY HEART. And I will say THANK YOU Karma for being an encouragement and a source of sunshine where there are many clouds.
    This is a gift today. You are a gift.
    I have missed India’s music. Thank you for posting one with the lyrics for me.
    I’m excited to have a new friend in you πŸ™‚


  7. Hi, thanks for the kind words on my RSD/CRPS story. Please contact me directly at godshalkd@gmail.com regarding linking up to spread the word on Justin’s ordeal.

    Liked by 2 people

  8. So glad we found each other’s blogs! You are inspiring!

    Liked by 1 person

  9. Thanks so much for visiting my site and choosing to follow along. You are doing Light work here.

    Liked by 1 person

  10. Sincere thanks for the “One Lovely Blog” award. I have carried out the steps. πŸ™‚

    Liked by 1 person

  11. Thanks for the inspirational blog. I nominated you for an award and just realised you already have it on your page. Well better twice than never! https://sailingpenguin.wordpress.com/2015/04/03/feeling-honoured-2nd-award-today-the-liebster-award-discover-new-blogs/

    Liked by 2 people

  12. sexyachymoody

    Hi! πŸ™‚ Love your blog! I’ve nominated you for the ENCOURAGING THUNDER Award. https://sexyachymoody.wordpress.com/2015/05/08/encouraging-thunder/

    Liked by 1 person

  13. As a fellow chronic pain sufferer, oh how I love what you are doing here on wordpress! So much so, that I am nominating you for the Versatile Blogger Award. Mazel Tov! Enjoy and have at it! I will keep on reading. You rock! Hope today is a good day for you!

    Liked by 2 people

    • Thank you for the nomination, Lisa! That’s so cool of you to introduce me to your readers. I’m totally honored. I love your page. Because I grew up Christian, my parents were very big on teaching us about Judaism, so many of the words you teach are familiar and heartwarming to me ❀
      Wishing you strength and low pain to make it through this winter.

      Liked by 1 person

  14. I broke my pelvis giving birth to my third child. About a year later, I had my pubic bone removed and plates and rods installed to hold my pelvis together. I was in a wheelchair for six months after that one. Eight very long years later, I had another surgery, this time on my back. A discectomy/laminectomy, after which i was in a back-brace for another six months. I am one of the lucky few who can count my surgery successful (which means I only have intermittent pain on a scale of below 5 USUALLY, other days its a 12). I’m so sorry you have to go through this and I understand the strain that it puts on your everyday life. I wish you all the best. If you are interested I have a facebook group I’m very proud of (https://www.facebook.com/groups/206261796054436/) called Suffering in Silence and we would love to have you. Blessed be.

    Liked by 2 people

  15. “Under the water, there are pearls”… so beautifully put! God bless you on your journey and here’s wishing you pain-free days!

    Liked by 2 people

  16. You are an inspiration. I so admire how you pull it together. I am rooting for you! The posters are great. Keep going! Hugs, Lori

    Liked by 2 people

  17. Good morning! A while ago, you answered an open invitiation to write a guest post about mental illness for my blog. If you are still interested (or even if you are not), please let me know. Email me at otterlover58@gmail.com
    Have a great weekend!

    Liked by 1 person

  18. Hi Mary,
    I have nominated you for the Blogger Recognition Award. You are under no obligation to participate but if you would like to check out this post where I nominated you. https://theinvisiblewarrior.com/2016/07/28/the-blogger-recognition-award/

    Thank you for your writing… I always look forward to you posts! -Kelly

    Liked by 1 person

  19. Hello I’m Niamh, I’m 16, an advocate and I run an organisation. My organisation is called YoungPeople ChronicIllnesses, a few chronically ill girls share our journeys, raise awareness and tell the stories of others. This is done by capturing the good and bad times through Instagram.
    We have a project called Spoonie Spotlight where we share the stories of people with chronic illnesses. We cover peoplenof all kinds with all types of illnesses.
    I’m contacting you to ask if you’d like to share your story to help raise awareness! I personally feel like personal experiences are more powerful than facts because each persons journey with any issue is different. If you’re interested please message me back and I’ll send further details.

    Liked by 2 people

  1. Pingback: My Toothbrush, My Trophy #pots | aBodyofHope

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A Complex Life

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Living life with a chronic illness is definitely not easy. But I do my best to push through all the barriers this illness puts in front of me! In my heart and mind, I believe maintaining a positive outlook on all situations in life will carry us through to much better times! I hope you find the information that I provide both helpful and inspirational!

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