Category Archives: Cancer

Green Tree / Fall

Tree Photo| Green Tree / Fall Poem #loss #death #sympathy

Tree Photo by Marie Hunter

~Green Tree / Fall~

Thank you, Green Tree.

For stretching out to meet each day unafraid.

Your leaves reached out to touch the morning rays.

Courageous branches held the birds and squirrels as they played.

You appreciated the spring rain, Green Tree.

Soaking up only what you needed.

Surrounding plants shaded by your un-impeding canopy.

Now, as you break and change, don’t be afraid, Green Tree.

Don’t hold back your leaves from color.

No one will question your strength, Green Tree.

Your beauty will remain.

Your life was not in vein.

As your last brown leaf exhales to the ground,

The forest will remember how you stood so proud.

Don’t fear the change, Green Tree.

A Body of Hope

Cancer Kids = TV Gold?

Christopher Kula Crusade for Childhood Cancer Awareness by #abodyofhope blog | "Cancer on Television" article

Cancer, how romantic! Doesn’t everyone want cancer? No?? Didn’t you love that movie about it? What about the new TV show with the cancer kids? Didn’t you read that funny, sexy book about the girl and guy who both had cancer? Isn’t cancer so super in style right now? Well, all these shows and books sure make it seem that way.

That’s right folks, cancer is hip. Young, pretty, cheekboney, fancy hat-wearing cancer: where you always have a boyfriend,  you aren’t really THAT sick, and all your friends come to visit you, showering you with attention. Doesn’t that sound like fun? Never: throwing up all the time-cancer, face and body all puffy because you are so bloated from the meds, surgeries, spinal taps, bone marrow transplants, spending so much time in the hospital your friends get tired of showing up- cancer. Oh man, but that sounds more like the depressing kind of “sick” and that’s more of a bummer….. We like seeing the attractive, uplifting, hopeful kind of sick people who are more like saints than sick.

Sounds pretty silly when you say out loud, huh? Even though these stories are all fictional and can bring some amount of awareness, it’s really important to remember: THEY. AREN’T. REAL.

A REAL story is my friend Chris who is fighting Leukemia for the second time in his 14-year-old life. He was just a little kid the first time he went into remission and fought long and hard back then when they celebrated his survival. At 13 doctors told him his monster had returned with another 3 years of treatments. THREE MORE YEARS!!! He has been nearly living in the hospital with REALLY not fun and definitely sick-making, often painful treatments, sometimes surgery, missing his freshman year of high school: Cancer.  His parents are in it with him for the ride. Chris is a dope guy and would definitely be a STAR in his own blockbuster movie, but we don’t want the movie to be about cancer!

Christopher's Crusade. Fight like a kid | Cancer on TV article #Leukemia #childhoodcancer #abodyofhope

Any of us can only really imagine what that would be like growing up. What were you doing when you were 14?

I’m guessing it isn’t like summer camp as portrayed on a recent TV show. And it’s probably not like making a wish so outrageous you can fly out of the country with your funny sexy cancer girlfriend like in a popular book/movie.

This month is Childhood Cancer Awareness Month. If you want to do something to help Chris, it would mean so much to him and to his family if you just Like his Facebook page Christopher’s Crusade. And if you do, you can ask Chris what he thinks of these shows and movies, too.

Share what you think of modern cancer fiction in the comments section. How do you think it effects our awareness?

Pain Pills: Chronic Pain Sufferers Speak

"Pain Pills: Chronic Pain Sufferers Speak" #Pain #Meds #Health #Cancer #Spoonie Art Print by Flat Earth Designs on Etsy. Nathaniel Bibaud. "Pill Rat"

Flat Earth Designs: Etsy

There is a great debate in America regarding prescription pain medication. From someone who hears this issue from fellow chronic pain sufferers regularly, we have a dog in the fight, too.

Those with chronic, non-cancer pain have been criminalized in the last 10 years along with their doctors because of the medications being prescribed…wait, no…flip that, reverse it. In the last 10 years, because of individuals abusing their pain medications, addicts buying opioids on the black market, and doctors over-prescribing irresponsibly, chronic pain patients, and their doctors have been treated like criminals.

Founding a support group for Complex Regional Pain Syndrome: known as the most painful condition one can endure, let me be clear that even people with the worst possible pain do not want to take pain medication. Why not? When they are screaming, crying, homebound and barely holding on, why won’t they take 1 tiny little pill? For one, they are afraid of becoming an addict! They are worried their family will think less of them. They are anxious that if their doctors prescribe it once and it helps, how will they ask for a refill without sounding like the “pill seekers” they hear about on television? Too many times people are nervous about taking their prescribed medication for severe chronic pain because of what they have seen on talk shows and read about on the internet.

Well, here’s something else to read…

A study in 2007 sampled 15,000 veterans with chronic pain (Edlund et al.). They were all given opioids, and only 2% abused his or her medications. I have read other studies like these for chronic and cancer pain in which the addiction or abuse rate is always extremely low. Apparently, people in excruciating pain, 24/7, every single day for years are managing his or her pain medication AS PRESCRIBED. This may shock some of those television personalities.

Why is it that those with chronic pain are much less likely to become addicted? In those without chronic pain, opioids cause a sense of euphoria. For those WITH chronic pain, the medication does not match or overcome the pain. A neuropathic pain study published in 2003 by the New England Journal of Medicine found that opioid pain medication only gave 36% pain reduction at the highest dose possible before side effects of the drug were intolerable. Those with such extreme pain continue to feel pain; therefore, how can there be a medicated euphoria? Maybe this is why there is a much lower rate of addiction in chronic and terminal pain.

Many of those I encounter are so conservative with their medications. They take as little as possible, even when pain is high. When pain is low enough to tolerate, most don’t take any pain medications. No one wants to take any type of medications. Those I encounter do what is available to them to manage pain: treatments, therapies, procedures, etc. Pain medication is seen as a means to an end. A short-term negotiation until there is a better pain relieving strategy. But for many, it is a necessary part of living, coping, and functioning with painful neurological disease.

Doctors who treat chronic pain exclusively are held to increasingly high protocols by the government. There are more changes all the time concerning how they can and cannot care for their ailing patients. With more government restrictions, more paperwork, more required seminars for doctors and nurses… Do you think MORE attention and time is being given to patients, or less? If you are a patient who sees a pain management specialist, you would be expected to sign a patient contract. The doctor has communication with your pharmacist, and you would be expected to furnish monthly urine and/ or blood depending upon which state you live in. Because of the current climate regarding these “controlled substances,” those with painful chronic illnesses like RSD, Peripheral Neuropathy, and Trigeminal Neuralgia who go to a hospital for an emergency may be treated like a criminal until their pain doctors can be contacted. Imagine if you were the one having a medical emergency!

Just a side note, in my research I learned that a doctor’s office can be thought of as a “pill mill” if 50% or more of its patients are treated for pain management, even if they offer physical therapy, biofeedback, counseling, acupuncture, interventional pain therapies, etc. If the doctor is chief at the local hospital, she still runs a “pill mill” up the road because she primarily treats people with chronic pain or cancer pain. Nice, right? CDC Pain Clinic Regulations

Whether you are judging someone else with chronic pain for taking pain medication, or if you are judging yourself because you think it means you are somehow weaker for taking your meds, please ask yourself a couple of questions. If you had another condition… cancer perhaps, would you feel guilty or like you had caved in by starting on the prescribed chemotherapy protocol? If you had diabetes, would you deprive yourself of your insulin, only taking half the dose, when you are on the verge of going into a diabetic coma? Do you feel shameful about the other medications and treatments you are being prescribed currently for pain?

If you are taking your medication as prescribed, then is your concern about becoming addicted, or is it the social stigma you worry about? For those judging, if your sister, son, or elderly grandfather were suddenly touched by crippling degenerative neurological pain, wouldn’t you want them to have the best Quality of Life possible while they explore ALL available treatment options? If every treatment they tried in the next 5 years failed to help, but you knew pain medication would keep them functioning through the pain, would you still want them to suffer the next 5 years without pain medication?

Pain medications can be dangerous, yes! They ABSOLUTELY should be taken with caution, with respect, and with the same seriousness with which you regard your disease. Along with all of the voices yelling about the pain medication issues, people who have chronic pain tend to have quieter voices, but please remember, we are still speaking.

**********

More resources:

DEA Rescheduling Hydrocodone

The Doctor’s Dilemma: opiate analgesics and chronic pain

How Does Chronic Pain Management Work?

art print by Nathaniel Bibaud. Flat Earth Designs on Etsy.

“Pill Rat”

Flat Earth Designs on Etsy. “Pill Rat” art print by Nathaniel Bibaud.

Thank you so much Nathaniel. Go buy something awesome from his shop!

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