Category Archives: Jane Gonzales
The Honest Truth
Poet Kristen Braatz Eiden shared this with us in honor of the passing of her beloved friend, and fellow poet Mary Jane Gonzales. Thank you, Kristen for sharing your beautiful and poignant poem. When I read your heartfelt poetry, it will always remind me of Jane ❤
The honest truth…
There are many things I would love to share
But wonder if you would even care
The honest truth…
We all have crosses to bare
So many burdens of past failures made aware
The honest truth…
Some things you would not want to hear
So many things that need to be made clear
The honest truth…
The pain is for real
But to many its seems unreal
The honest truth…
We all stumble and fall
We all need someone to catch our fall
The honest truth…
When we begin to realize there is no perfect here on earth
We begin to see life at its true worth
The honest truth…
Some of my worst days have become my best
There is truly hope in the unrest
The honest truth…
I would not be where I am today
Without every pain and heartache of yesterday
The honest truth…
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“Rock of Ages” poem by Mary Jane Gonzales
ROCK OF AGES
Father, I am sinking.
Would you throw to me a rope?
Would you please confirm the scripture
That I’m never without hope?
Would you strengthen me in spirit
As I trod this rocky road?
Would you bear for me the burden
That is such a heavy load?
Would you wipe away the tears
That keep falling from my eyes?
Would you lovingly send mercy
When you hear my anguished cries?
Would you not let pain consume me
Taking focus out of prayer?
Would you be my rock of ages
Greater than my worldly care?
-Copyright Mary Jane Gonzales
(PSALM 91:1,14 Inspiration verses)
Today we honor author, poet, and chronic pain advocate Mary Jane Gonzales by reading her poetry, as her family and friends gather to pay tribute to her at her Celebration of Life service. Her poetry was actually her prayers, as she began praying in verse after her illness struck nearly 30 years ago. Jane became a Christian later in her life, and her faith was her rock and guiding light throughout her battle with the severe neurological disease Complex Regional Pain Syndrome, which kept her confined to a bed through the final years. Though her body fought her daily, she used what energy she had to be a source of encouragement to others living in pain. If you would like to read one of her inspiring books, you can find her author page here where several of her books are available for download as ebooks.
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“My Only Consolation” song by Mary Jane Gonzales
“My Only Consolation”
Written by Mary Jane Gonzales
Music and Performance by Lequita Hoffpauir
Copyright 2011
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“Shape me Yet Anew” Poem by Mary Jane Gonzales
SHAPE ME YET ANEW
Father God, I pray
That you would shape me yet anew,
As this pot is cracked and broken
And un-beautiful to you.
Lord, I feel as if you’ve started
With a fresh supply of clay
And I’m spinning on the wheel
And my life’s begun to sway.
When you’ve shaped me in your image
And you put me in the kiln,
In the furnace of affliction
To be set and processed still,
Let the outcome be for glory,
Let on-lookers stop and gasp.
“How did He make this from nothing?”
Let the people stop and ask.
Let the beauty draw attention
To the artist and His work.
Give me beauty and a purpose, Lord,
Of which I would not shirk.
As it is with real life pottery,
A pitcher or a vase,
Make me useful to the Master
In the setting where I’m placed.
-Mary Jane Gonzales
JEREMIAH 18:4 (NIV)
But the pot he was shaping from the clay was marred in his hands; so the potter formed it into another pot, shaping it as seemed best to him.
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Mary Jane Gonzales’s ‘Celebration of Life’ and Obituary
Below is the link to beloved author, poet, and long time chronic pain advocate, Jane Gonzales’s obituary.
Her family is saying goodbye and honoring her with a ‘Celebration of her Life’.
Obituary of Mary Jane Gonzales
Her service is on Feb 5th, in Houston, TX.
For those of us who cannot make it to her service to say our final goodbyes, we will be sharing our special memories, and the many ways she affected our lives and inspired us. We’ll also be posting some of Jane’s wonderful heartfelt poetry and articles here as well.
I invite you share your precious memories of our sister, Mary Jane Gonzales, so we can all remember her and celebrate her incredible life together.
abodyofhope@mail.com
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Saying Goodbye to Mary Jane Gonzales
Mary Jane Gonzales, one of the greatest voices for CRPS/RSD and chronic pain awareness has passed away after battling Complex Regional Pain Syndrome for over 25 years.
She passed away on January 21st, 2018 from complications of chronic illness. She turned 70 this past year.
Jane authored several inspiring books (linked below), her Facebook page Poetic Hearts remains open, and her blog, http://LifethroughPoetryandProse.simplesite.com has an abundance of Jane’s articles on Chronic Pain. You can leave a comment on her blog or her Facebook Timeline for her family if you’d like.
She was a poet, an artist, mother, grandmother, and one of my closest friends.
I’m not exactly sure how to proceed, or how to honor her memory properly yet.
But, I want to invite you, if you have a personal story about Jane, a memory, artwork, a poem, etc. Please email it to me at abodyofhope@mail.com
I need your help. I’m organizing a month-long tribute to share her life, and your messages will be at the center.
Maximum 800 words, no minimumShe will be missed by so many. But she left so much behind for us all to remember her and what she stood for.
If you have followed this blog, you’ll already be familiar with Mary Jane Gonzales. Read more about her and her books below, an article I wrote about her 2 years ago as a surprise for her when her 10th book was released.
She touched so many lives, and she will be missed by all of us.
She is no longer suffering. She is finally free. She’s walking in the sunshine with her best friend and Savior, Jesus. I look forward to telling you more about her and her life in the coming days. Take heart knowing that she is where her soul has longed to be. She ran the race.
When it feels like life is breaking apart around us, we must go out of our way to pour light and wisdom back into our lives. I wanted to share the books of Mary Jane Gonzales here because self care during a separation or divorce is so crucial! This author, poet, mother, and chronic pain survivor knows a thing or two about caring for her own body and spirit.
She just released her 10th book, A Voice Unheard, which is unlike any of her previous books. Her compassion and inside knowledge for the current issues those with chronic illness live with silently, makes this book a must read for patients, family of anyone diagnosed with a chronic disease, and health care professionals.
Gonzales utilizes the patient advocacy work she has done over the years to speak out on behalf of those marginalized on account of being disabled or chronically ill…
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A Voice Unheard: Author Interview with Chronic Pain advocate, Jane Gonzales
I am so happy to welcome, author, poet, blogger, and advocate for the chronic pain community, Mary Jane Gonzales!
I was given the great honor of being asked to contribute a piece for her book, A Voice Unheard. After reading it in its entirety, I immediately asked Ms. Gonzales for an interview! I know it will impact every reader, disabled and abled alike.
Congratulations on publishing your 10th book, A Voice Unheard.
You have very generously allowed your powerful poetry to be shared here on a Body of Hope in the past, but this is your first interview here. I’m excited! Shall we begin?
1. Did you do anything special to celebrate your 10th book release? or Do you have a traditional book completion ritual?
Well, it’s funny you would ask, because you had asked me that previously and my answer was no (I wasn’t planning anything special). But it started me thinking that this is a special time that will never come again. So, with your inspiration, I decided to have an event on Facebook. As to a “traditional book completion ritual”, my response would be “breathe”!
2. How long have you been living with chronic illness? Would you mind sharing a little about your diagnosis?
This summer will be thirty-one years that I’ve had RSD, but it was undiagnosed for eighteen years.
3. Aside from writing, what do you enjoy doing in your free time?
My pastimes would be reading, writing and crafting (especially, card making and scrap booking).
4. It’s clear you have a talent for soul stirring, magnetic writing, but why are you passionate to write for the chronic illness audience?
Because that’s where I live; in a community with others like me, who understand me and don’t see me as “different” or “weird”. Plus, I want them/ others to know they are not alone and they are not crazy, which is how this syndrome can make you feel.
5. How was compiling A Voice Unheard different from writing a book like In the Blink of an Eye?
Well In the Blink of An Eye was a personal memoir written about me, and A Voice Unheard was written about a community/ involving members of the community. I found that to be a bit scary, actually.
Another difference between the two is that, when I wrote In the Blink of An Eye, I had already dealt with the issues and was reconciled to the situation. But that was not the case for where I was at when I wrote A Voice Unheard. And, for that reason, I couldn’t do it justice. I had the inspiration but I couldn’t write it in a way that would honor God. Therefore, it took me a year to write it, which is ironic because it’s one of my shortest books. Compiling the stories was easy and exciting because every story fit perfectly with what I myself had written. When that happens, you know it was meant to be!
Another difference would be that every book I had written prior had the stories first; then, the chapter titles later. With A Voice Unheard, all the chapter titles were inspired first and the stories came later.
6. How would you describe your personal writing process?
(For example, are you research driven, logistic, intuitive, spiritually moved, or other. Please explain.)
I think I’m all of these things to a degree, but, above all, spiritually moved. I can’t just pick a topic to write about. I have to be inspired, in order to write.
7. What is your favorite part of being an author?
My favorite part of being an author is the feeling I get when the inspiration is flowing. I also enjoy editing, which is probably an understatement, since I’m drawn/gravitate to it.
What is your least favorite part of being an author?
My least favorite part is marketing i.e. self promotion.
8. In your new book, you described the world we live in today as “a microwave society.” This is a great terminology! For those who haven’t yet read your book, can you explain your meaning, and how this current mentality effects chronic illness survivors and our loved ones?
What I meant was, in our society, we want everything quick. We don’t want to wait for anything. So if someone gets sick or injured, and it continues, there’s no patience or tolerance for a lack of healing.
9. In A Voice Unheard, you share very personal accounts from fellow chronic illness sufferers. Why did you go out of your way to bring these stories into the light?
Because they need to be told!
10. In your new book, you cover practical but serious topics such as the importance of quality care giving, which you are always a strong advocate for, and you discuss hot-button subjects like pain management. Why did you feel this book was important to write now?
Because I feel the issues are critical and what’s happening is wrong. It’s one thing to have a problem, it’s another thing to have no voice, no say in the situation.
I wrote it now because I couldn’t be silent anymore.
11. Other than those who live with chronic pain and chronic illness, who else do you hope reads A Voice Unheard, and why?
I hope it is read by all. The disabled, to feel supported. The abled, to be made aware. Ultimately, to make a difference.
A Voice Unheard is available for your Nook, tablet, or download as PDF ebook at Smashwords.
Interview was first published April, 2016
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Interview with author Mary Jane Gonzales and book give away!
I am so happy to welcome, author, poet, blogger, and advocate for chronic illness awareness, Mary Jane Gonzales! Congratulations on publishing your 10th book, A Voice Unheard.Because you are doing give-aways on your book event page all week, I thought we would join in on the fun here as well! The first person who comments below on this interview will receive your newly released book! (If you are the first to comment, I will message you to make arrangements).(I had the great privilege of reading A Voice Unheard recently, and I immediately asked Ms. Gonzales for an exclusive interview. I know this book will impact every single reader, both the disabled, and abled alike.)You have very generously allowed your powerful poetry to be shared here on aBodyofHope in the past, but this is your first interview here (and mine as well). I’m excited! Shall we begin?
1. Did you do anything special to celebrate your 10th book release? or Do you have a traditional book completion ritual?Well, it’s funny you would ask, because you had asked me that previously and my answer was no (I wasn’t planning anything special). But it started me thinking that this is a special time that will never come again. So, with your inspiration, I decided to have an event on Facebook. As to a “traditional book completion ritual”, my response would be “breathe”!
2. How long have you been living with chronic illness? Would you mind sharing a little about your diagnosis?This summer will be thirty-one years that I’ve had RSD, but it was undiagnosed for eighteen years.
3. Aside from writing, what do you enjoy doing in your free time?My pastimes would be reading, writing and crafting (especially, card making and scrap booking).
4. It’s clear you have a talent for soul stirring, magnetic writing, but why are you passionate to write for the chronic illness audience?Because that’s where I live; in a community with others like me, who understand me and don’t see me as “different” or “weird”. Plus, I want them/ others to know they are not alone and they are not crazy, which is how this syndrome can make you feel.
5. How was compiling A Voice Unheard different from writing a book like In the Blink of an Eye?Well In the Blink of An Eye was a personal memoir written about me, and A Voice Unheard was written about a community/ involving members of the community. I found that to be a bit scary, actually.Another difference between the two is that, when I wrote In the Blink of An Eye, I had already dealt with the issues and was reconciled to the situation. But that was not the case for where I was at when I wrote A Voice Unheard. And, for that reason, I couldn’t do it justice. I had the inspiration but I couldn’t write it in a way that would honor God. Therefore, it took me a year to write it, which is ironic because it’s one of my shortest books. Compiling the stories was easy and exciting because every story fit perfectly with what I myself had written. When that happens, you know it was meant to be!Another difference would be that every book I had written prior had the stories first; then, the chapter titles later. With A Voice Unheard, all the chapter titles were inspired first and the stories came later.
6. How would you describe your personal writing process?(For example, are you research driven, logistic, intuitive, spiritually moved, or other. Please explain.)I think I’m all of these things to a degree, but, above all, spiritually moved. I can’t just pick a topic to write about. I have to be inspired, in order to write.
7. What is your favorite part of being an author?My favorite part of being an author is the feeling I get when the inspiration is flowing. I also enjoy editing, which is probably an understatement, since I’m drawn/gravitate to it.What is your least favorite part of being an author?My least favorite part is marketing i.e. self promotion.
8. In your new book, you described the world we live in today as “a microwave society.” This is a great terminology! For those who haven’t yet read your book, can you explain your meaning, and how this current mentality effects chronic illness survivors and our loved ones?What I meant was, in our society, we want everything quick. We don’t want to wait for anything. So if someone gets sick or injured, and it continues, there’s no patience or tolerance for a lack of healing.
9. In A Voice Unheard, you share very personal accounts from fellow chronic illness sufferers. Why did you go out of your way to bring these stories into the light?Because they need to be told!
10. In your new book, you cover practical but serious topics such as the importance of quality care giving, which you are always a strong advocate for, and you discuss hot-button subjects like pain management. Why did you feel this book was important to write now?Because I feel the issues are critical and what’s happening is wrong. It’s one thing to have a problem, it’s another thing to have no voice, no say in the situation.I wrote it now because I couldn’t be silent anymore.
11. Other than those who live with chronic pain and chronic illness, who else do you hope reads A Voice Unheard, and why?I hope it is read by all. The disabled, to feel supported. The abled, to be made aware. Ultimately, to make a difference.
A Voice Unheard is available for your Nook at Barnes and Noble. It is also available for ebook download for your tablet, or cellphone and on PDF for your computer: Smashwords.
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A Legacy to Remember: Mary LaBree RSD / CRPS Activist
The 15th of October, a very beloved, beautiful soul and long-time health activist, Mary LaBree passed away due to complications from RSD/CRPS. Here, one of her best friends, Mary Jane Gonzales shares a heartfelt poem with us along with the late Mary LaBree’s story. This was originally posted on the RSD/CRPS awareness Facebook page: In the Blink of an Eye.
******
By Poet/Author, Mary Jane Gonzales:
“With this being RSD/CRPS Awareness Month, I’d like to begin the month by acknowledging the work of Mary LaBree who is no longer with us. Mary shared a small part of her story with us in September for Chronic Pain Awareness, but was reserving the bulk of her story for an impending book. For those of you who missed her post back in September, you can read it below. Though it offers just a glimpse at her story, I would like to highlight some of her accomplishments that I know of. Her and her daughter’s RSD Support Group was the second support group in the country, and the first to get a state proclamation (back in 1990). She founded the New England RSD Coalition, whose function was to serve and educate: through support, seminars and fund raising. She held teaching seminars with well known doctors; collaborating with them over many years. She was a strong advocate for RSD awareness, and a key figure in the RSD community. Even recently, she was asked to speak at a conference, but had to decline for health reasons.
Before I repeat her post from September, I’d like to share a poem I wrote for her a few months ago for her intended book.
A HELPER AND ADVOCATE
A soldier, a warrior,
A patient with tears,
A helper and advocate
For so many years.
Reaching and touching
All that she could,
To help them endure
What no one should.
Searching for answers,
Seeking a cure,
For her and her family,
And all who suffer
This dreaded disease
Called RSD…
Her reason for working
So tirelessly.
Poem Copyright Mary Jane Gonzales“
*******
My Chronic Pain Story
by Mary LaBree
“I became aware of RSD in the mid 80’s when I went with my daughter to the pain clinic where she had been diagnosed with RSD. Then, about a year or so later, when I got hurt and fractured my spine, my daughter said she thought I had RSD also. So she took me to the same clinic, to see her doctor, and I, too, was diagnosed with RSD.
After that, I went into treatment and it took four years for me to get better. Along with Post Galvanic Stimulation, which helped me a lot, some other treatments I’ve had include:
Medication
Nerve blocks
Physical therapy
Aquatic Therapy
Acupuncture
Chiropractic
Alphalipoic Acid (IV)
Reiki
Radio Frequency Ablation
Though all the treatments have helped, none have been long lasting. As you all know, RSD (Reflex Sympathetic Dystrophy), now known as CRPS (Complex Regional Pain Syndrome) has periods of worsening, be it flares or spreads. I was fifty years old when I got RSD. I am now seventy eight. In those twenty eight years with RSD/CRPS, I have alternated between walking unassisted, walking with a walker, and using a powerchair.
In the late 1980’s, my daughter and I started “RSD Support Group”. We were the 2nd support group in the country, and the 1st to get a state proclamation (back in 1990). It was the Massachusetts State Proclamation and we’ve gotten one every year since. We chose the color red and the month of July because July is considered the Freedom Month.
Later, my daughter moved out of state and she passed the support group onto me alone. In 1997, a colleague who came up for the July “Proclamation Awards Ceremony” approached me to form an organization, which was named the New England RSD Coalition. For all these years, the function of the coalition has been to serve and educate; through support, seminars and fund raising.
I have learned much over the years with Chronic Illness. I have learned to research all that I can about this disease which has affected eight people in my family…which was devastating and heart wrenching. I have learned to advocate for both awareness and patients. I have learned things that I can do to help myself beyond medical treatments, such as:
exercise
warm baths
sitting in the sun
a positive spirit
~and~
GIVING
Helping and doing for others is my “secret” for living with RSD, or just plain living!”
-Mary LaBree
******
Mary LaBree left a lasting imprint on the chronic pain and RSD/CRPS community. She is one of the first chronic pain health activists. Without her dedication in clearing a path, so many of us would still be suffering in the dark. Mary LaBree’s commitment to her cause shows that life does not end with chronic illness; she made her battle her life’s work. Thank you, Mary LaBree.
**Also read In Memory of Mary LaBree- An Original RSD Advocate from RSDAdvisory, a personal account of a long and loving friendship with Mary.
Since Mary’s passing on October 15th, very sadly, more RSD/CRPS angels have been lost. We honor them all by raising awareness about the seriousness of this disease. Our hearts and prayers go out to their friends and families.
For a non-fatal disease, far too many don’t survive.
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Fragmentation: poem
FRAGMENTATION
Father, this is private.
I could never tell a soul
Of my heart’s fragmentation
And the need to be made whole;
How the theft of affirmation
And the absence of support
Is transmitted to my mind
As a negative report,
How rejection from the people
That were closest in my life
Could so deeply pierce my heart
And create a lot of strife.
Were it not for words of value
That are spoken in your book
That translate into the blessing
If through spirit eyes I look,
Could I even go on living
With a spirit that’s been crushed,
And the cries within my heart
That despair has served to hush.
Were it not for living presence
Of your Spirit within me,
Through your grace and lovingkindness,
Could I ‘ere begin to see
That I’m loved beyond all measure
And although I can’t conceive
There’s a plan and greater purpose
For the trials, I believe.
I believe because you’ve told me
And I know you cannot lie,
And therein lies my sustenance,
My comfort and my high.
-by Mary Jane Gonzales
Inspiration Scripture: “Let us hold fast to the profession of our faith without wavering (for He is faithful who promised).” HEBREWS 10:23 (TMB)
*******
Guest Contributor, Mary Jane Gonzales began writing poetry, music, and crafting over 20 years ago when her harrowing journey with a chronic neuropathic pain disease, Complex Regional Pain Syndrome / RSD began. Now, she is a published author of several books, pillar in the chronic pain community, and continues to share her story, struggles, and faith journey to shine a light to help others. Her book In the Blink of an Eye is quite popular in the pain community, and her newest book, Poetic Devotions for those in Pain is a personal favorite of mine. Today, I am so honored to feature Mary Jane Gonzales’s “Fragmentation” from her heartfelt book of poetry.
Find her bio and book collection at: PoetMaryJaneGonzales.tateauthor.com
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