Claire Wineland Quotes, remembering respected health advocate

The title of this article should actually say that Claire Wineland was a “Life Advocate.” She was the epitome of MLK’s quote, “It doesn’t matter how long you live, but how well you do it.”

I didn’t know Claire personally, but like so many of her followers on social media, those who read her book or had the pleasure of attending one of her talks in person, she felt like a friend. She had a talent for drawing people in, then she would reveal her truths to us.

Like a teenage philosopher, the Cystic Fibrosis fighter pondered mortality, how to live boldly in spite of limitations, and the depth of the human spirit from her social media pages and youtube channel. She said that her two favorite hobbies were to think and talk, so she put her best gifts to good use!

“I don’t agree to do these talks to tell you how to have a happy life. Life is hard. It’s painful. You can suffer. You can experience what it’s like to be a human being with all of the messy gross emotions that come with it, and still make a life that you are very very proud of.”

Sometimes Claire shared her thought provoking videos from her apartment, or laying in a hospital bed; we once even found her clothed in a hot bathtub!

That was Claire Wineland. She was spunky and full of spirit, never ceasing to surprise or defy expectations!

When she spoke, her wisdom and maturity made you forget that she was only in her late teens– just coming into her early 20’s.

As a young adult, she became a speaker, author, and founder of a non-profit for kids with her condition Cystic Fibrosis called Claire’s Place Foundation. Going on speaking engagements (when she was well enough), afforded her opportunities to see more of the world, to travel, to make friends, stay in hotels instead of hospitals, and gave her new life experiences which she cherished.

Through her professionalism in health activism and being in the public eye, Claire Wineland helped make the work of health advocacy a more respected job title.

She took a strong stance on addressing the way the world infantalizes young people living with illness, something she understood all too well growing up with CF.

She was a rare soul as much as her perspective on life was unique. At times controversial, Claire shared that happiness itself wasn’t the key to life. Instead, she maintained that living out our purpose through service is where we find deeper meaning.

In one of her last videos, Claire spoke passionately about her charity she created she referred to as her “baby”. She spoke on the undenianble worth she believed everyone has regardless of limitations. This had been her battlecry throughout her career, which made her beloved to people living with disabilities of all types.

Her comments section always exploded with thoughtful discussions, as she had a way of eliciting meaningful conversations. People would engage one another on life, death, happiness, and pondering the true meaning of existence.

Claire’s following consists of terminally ill individuals, healthy young people, adults, Cystic Fibrosis fighters, and people with long term chronic diseases like myself. (Even celebrities from Bernie Sanders to Anne Hathaway are part of Claire’s fan club.) You can imagine the conversations she sparked, and the perspectives she challenged!

Claire had fought to outlive her life expectancy, and she overcame near-death several times. Because of her experiences, she believed in demystifying mortality, and used her prognosis to wake us up into living our own lives more fruitfully.

In one of the last videos she shared, she plead for support to get a lung transplant- something she once vowed she would never agree to. Though she belly-laughed and joked through her former talks, in this one, her tears flowed. She shared the possibilities and dreams she saw for herself if the transplant was a success. For the first time in her life, she was looking forward to her future. An enormous outpouring of both financial and heartfelt support followed from her fans.

More than enough funding was donated to cover costs of her medical care. A video of Claire’s genuine appreciation followed in return. She expressed her humility and surprise that so many contributed and reached out to encourage her. The overflow of funds were given to Claire’s Cystic Fibrosis Foundation.

Because of her online friends, Claire went into her surgery overjoyed with hope, gratitude, and feeling love from hundreds of thousands worldwide.

The people she had inspired and imparted her wisdom to for years were able to send her off to her surgery with well wishes and a flooding of encouragement.

She is said to have suffered a stroke on September 2, 2018. Claire was put into a medically induced coma, and taken off of life support one week post-operation. Her parents say she passed peacefully.

She was 21 years old.

Sincere condolences to the Wineland family. As a long time chronic illness sufferer, Claire touched my life and heart as she did for so many others.

I leave you with my favorite video of Claire’s, one of her most powerful TedX talks. I hope you will watch and share her message… In loving memory of Claire.

Kiss my Affirmation

If you like someone to boss you into positive thinking, this affirmation list is the perfect place for you. Welcome! By the way, that was your first affirmation. I’m charging you per happy thought- they don’t come cheap these days, you know? If this makes you smile, that’s double. Technically, it’s not exactly a mantra, but it still counts as positivity. I didn’t make up the rules! If you don’t like it, take it up with the Bureau for Good Vibes. They are monsters when it comes to positive thinking. Just try to have a single doubt in their presence, and security will escort you straight out of the building. Those people sound laid back and relaxed, but that’s just what they want you to think. The truth? Two words: Illumi Nati. 

In an attempt to get on their good side, I’ve bribed them with a vintage set of Bob Ross, The Joy of Painting VHS tapes. I’m crossing my fingers that Bob’s “happy little trees” and positive vibe-spraying hair will get me some good karma with the underground happy committee. So I’m sweetening the pot with this affirmation list.

All kidding aside, below is a mix of uplifting words, and useful reminders for you and any friend who might need a pick-me-up. I like to tack encouraging messages for myself up on my wall as a simple way to keep focused on bright spots in my life. (Especially when that darn happiness bureau is out there😉).

• Your butt is the perfect size.
• You give good Facebook.
• Repeat after me: “It’s ok if the house is messy.”
• You folded the socks today- good job! You deserve a cookie.

• You are enough- as you are.
• You don’t have to be fearless to be brave.
• Try being grateful instead of guilty.
• It won’t be perfect, but it will be epic!
• Don’t forget that you are a stone cold warrior.

• You didn’t swear in front of the kids today! A++
• You changed out of your pj’s! Well done, you.
• Gold star for eating breakfast🌟 You earned yourself another cookie…ok, an oatmeal cookie 😉

• The plants are still alive- that’s the way!

• You paid all your bills on time ✔✔
• You wore a bra today- Killing it!
• A nap is a great idea!!!
• You moisturized? Beast mode.

• Face each day like you have a glue stick in one hand and a jar of glitter in the other.
• Punch today in the face like it’s bullying your kid. (But don’t be seriously punching kids for real though. Weirdo.)
• Take your vitamins, get some sunshine, wash behind your ears, and never forget to DVR Project Runway.

• Stop. Freaking. Out.
• You’ve got this.
• Deep breaths.
• Tomorrow is not for today.

• You are meant to be.
• Your purpose goes beyond the walls of a building.
• God has always loved you, and always will.

• No need to make the bed- what kind of psycho does that anyway?
• In some cultures, tummy rolls are a sign of beauty and prosperity. True story.
• If you wish you had more curves, smile more. Your smile is the best curve on your body.

• Smile. Take selfies. Wear what you want. Be happy in your skin. There are millions of people who would love to look exactly like you right now (including you in about 20 years.)
• You can’t buy happiness, but you can buy chocolate. And that’s pretty close.
• I followed my heart, and it lead me to the fridge.
• I’m learning to be my authentic self…my authentic self believes you should be doing the laundry.
• On an emoji scale from unicorns to poops, make today a unicorn kind of day🦄

• In today’s world, caring about other people is about the most radical thing you can do.
• If your grandma were going through what you are now, what would you want to tell her?
•  All of this will be worth it in the end.

 

According to studies in positive psychology dating back since the 1980’s, the way affirmations work is you must repeat the same phrase to yourself over an extended period. Say the positive affirmation every time you have the compusively negative or harmful thought you’re trying to replace. For example, each time you have a reocurring thought or feeling of loneliness, use the same powerful phrase, quote or prayer to affirm that you are loved. In time, you can actually change your own mind and rewire the way you think! #neuroplasticity

 

I would love to hear your personal favorite affirmation in the comments section below.

“Waking in Winter” quote by Sylvia Plath

Lines by Mitsuhiko Kamada

“Waking In Winter” by Sylvia Plath
I can taste the tin of the sky —- the real tin thing.

Winter dawn is the color of metal,

The trees stiffen into place like burnt nerves.

All night I have dreamed of destruction, annihilations —-

An assembly-line of cut throats, and you and I

Inching off in the gray Chevrolet, drinking the green

Poison of stilled lawns, the little clapboard gravestones,

Noiseless, on rubber wheels, on the way to the sea resort.
How the balconies echoed! How the sun lit up

The skulls, the unbuckled bones facing the view!

Space! Space! The bed linen was giving out entirely.

Cot legs melted in terrible attitudes, and the nurses —-

Each nurse patched her soul to a wound and disappeared.

The deathly guests had not been satisfied

With the rooms, or the smiles, or the beautiful rubber plants,

Or the sea, Hushing their peeled sense like Old Mother Morphia.

Inspirational quote by Marianne Williamson

​

Full quote:

“We ask ourselves, ‘Who am I to be brilliant, gorgeous, talented, fabulous?’ Actually, who are you not to be? You are a child of God. Your playing small does not serve the world. There is nothing enlightened about shrinking so that other people won’t feel insecure around you. We are all meant to shine, as children do. We were born to make manifest the glory of God that is within us. It’s not just in some of us; it’s in everyone. And as we let our own light shine, we unconsciously give other people permission to do the same. As we are liberated from our own fear, our presence automatically liberates others.”

-Marianne Williamson 

“Life will break you” quote Louise Erdrich

The Interrupted Kiss by Amandine Van Ray

“Life will break you.

Nobody can protect you from that,

and living alone won’t either,

for solitude will also break you with its yearning.

You have to love.

You have to feel.

It is the reason you are here on earth.

You are here to risk your heart.

You are here to be swallowed up.

And when it happens that you are broken,

or betrayed, or left, or hurt,

or death brushes near,

let yourself sit by an apple tree

and listen to the apples falling all around you in heaps,

wasting their sweetness.

Tell yourself you tasted as many as you could.”

― Louise Erdrich

“Sorrow prepares you for Joy,” Rumi quote

“Sorrow prepares you for joy. It violently sweeps everything out of your house, so that new joy can find space to enter. It shakes the yellow leaves from the bough of your heart, so that fresh, green leaves can grow in their place. It pulls up the rotten roots, so that new roots hidden beneath have room to grow. Whatever sorrow shakes from your heart, far better things will take their place.”

― Rumi

“How can a body withstand this?” quote by Ellen Bass

“To love life, to love it even

when you have no stomach for it

and everything you’ve held dear

crumbles like burnt paper in your hands,

your throat filled with the silt of it.

When grief sits with you, its tropical heat

thickening the air, heavy as water

more fit for gills than lungs;

when grief weights you like your own flesh

only more of it, an obesity of grief,

you think, How can a body withstand this?

Then you hold life like a face

between your palms, a plain face,

no charming smile, no violet eyes,

and you say, yes, I will take you

I will love you, again.”

― Ellen Bass

Live Under Hope’s Roof #quote

The very least you can do in your life is figure out what you hope for.

And the most you can do is live inside of that hope.

Not admire it from a distance,

But live right in it…

Under its roof.

-Barbara Kingsolver

“Having a chronic illness…like being invaded”

Quote by Allison Lurie, writer of The Last Resort:

“Having a chronic illness, Molly thought, was like being invaded. Her grandmother back in Michigan used to tell about the day one of their cows got loose and wandered into the parlor, and the awful time they had getting her out. That was exactly what Molly’s arthritis was like: as if some big old cow had got into her house and wouldn’t go away. It just sat there, taking up space in her life and making everything more difficult, mooing loudly from time to time and making cow pies, and all she could do really was edge around it and put up with it.

When other people first became aware of the cow, they expressed concern and anxiety. They suggested strategies for getting the animal out of Molly’s parlor: remedies and doctors and procedures, some mainstream and some New Age. They related anecdotes of friends who had removed their own cows in one way or another. But after a while they had exhausted their suggestions. Then they usually began to pretend that the cow wasn’t there, and they preferred for Molly to go along with the pretense.”

“Beside the Fire” ―with J.R.R. Tolkien

Dreaming of Autumn by LastChance on Polyvore

“I sit beside the fire and think
Of all that I have seen
Of meadow flowers and butterflies
In summers that have been

Of yellow leaves and gossamer
In autumns that there were
With morning mist and silver sun
And wind upon my hair

I sit beside the fire and think
Of how the world will be
When winter comes without a spring
That I shall ever see

For still there are so many things
That I have never seen
In every wood in every spring
There is a different green

I sit beside the fire and think
Of people long ago
And people that will see a world
That I shall never know

But all the while I sit and think
Of times there were before
I listen for returning feet
And voices at the door”

― J.R.R. Tolkien