November is Caregiver Awareness Month, when we honor the people in our support system. Three years ago, on this blog, @aBodyofHope named November 13th, Caregiver Appreciation Day, otherwise known as Supporter Appreciation Day!
On this day, we can reflect on the ways people around us make life a little bit brighter!
It’s rare to find those who care, even after tragedy strikes. In crisis, our circles tend to thin out, and only the very special remain in our lives, trying to fight along with us. We try to convey how much we care as often as we can, but words can feel inadequate at times to express what their presence means. A sweet little reminder always helps to drive the point home! 🙂
Your support system may include a friend, your spouse, a family member, a physician, a home care nurse, a neighbor, an online support group, or people from your church. How touched they’ll be when they’re sent this surprise from you!
Consider the small and big ways they bring light into your world. Share one of these specially made images to convey your gratitude.
Because of my personal losses in the last couple years, I didn’t know if I could continue doing this campaign each November. In time however, the people who remained in my life cheering me forward, reminding me of my strength, now appear sweeter and stronger than ever. More than anything, I wish I didn’t need any help at all because giving is simply easier than recieving… It’s such a learning curve, but I try to be more grateful than guilty as much as possible. Any way to inject more kindness and smiles into this world is something I want to fight for. I hope you will help spread the word!
If you are a caregiver to someone with a chronic or terminal illness, if you’re in the support system of a loved one with mental illness, or if you are supporting someone going through a major crisis, this is a reminder how much you matter. We can’t run away from the hands we’ve been dealt. You might have that choice, yet you’ve chosen to stay and fight along side your loved one. You lend your own emotional, physical, or mental strength at times. Someone like you is so very rare. Thank you for being you!
This collection was created as a collaboration between charcoal artist, CRPS and Mast Cell Activation Syndrome sufferer, Robyn Triscari and myself as a gift to you! Robyn wanted to give the chronic illness community a way to thank our supporters and “champions” so we worked together on this year’s Supporter Appreciation Day! Thank you, Robyn for your generous idea, and for sharing your artistic talents!
To my readers: It’s so meaningful to me that you follow this page, leave such encouraging comments, and share these messages with your friends. I treasure your readership and continue to pray for you. You challenge yourselves to learn all you possibly can from your lives, and your comments continue to challenge me. You make my world so much brighter, and bigger! I want to thank you on this supporter appreciation day for your impact on my life!
You may save these images to your phone or computer, share them with your loved ones on social media, and we would love for you to print them if you’d like to frame one as a gift or send as a special card.
We encourage you to include your own personal message of thanks along with it.
If you have a “champion” in your life, someone cheering you forward, this is the perfect occasion to say, you’re the best.
We hope you will help us pass on the Caregiver Appreciation Day message!
For your convenience, I have also made these images available to share individually from the Facebook page, https://www.facebook.com/groups/chronically.inspired
Please share in comments who you are appreciating today!
More poetry, Quotes for Caregivers, and what it means to have a Home Health Aid here
This is my first attempt at linking downloadable printables here, so your feedback is appreciated.
It’s not free.
It’s not “regional,”
And it’s not seasonal.
They say it’s like fire, but it’s so much more.
Like pieces of yourself scattered on the floor.
It’s not free.
It will cost, and it will take.
People will think your pain is fake.
You’ll feel it in your body;
You’ll feel it in your soul.
It can start when you’re a kid;
It can last until you’re old.
It’s not free.
Your family will pay.
Some will behave in a different way.
Some try to help;
Some go away.
Some can’t stay to watch you change.
It’s not free.
It moves and grows in ways you cannot know.
You adapt…you can flow.
You can bend,
You can throw caution to the wind!
It’s not free.
You pay the toll;
You walk the road.
Share some coins;
You’re not alone.
Today is Color the World Orange Day! This is an annual international campaign to raise awareness and funds for chronic pain research. Please participate by sharing something orange to social media (or to your blog) with the hashtag #CRPSORANGEDAY. Thank you!
For nearly 11 years I have had a neurological chronic pain condition which is known as mysterious, under-researched, difficult to treat, incurable, lacking in treatment options, and also like Chronic Migraine, many say my chronic pain condition is also “rare” when in fact neither actually should be.
Before I had been diagnosed with Complex Regional Pain Syndrome in 2004 (known as one of the most painful chronic disorders) I had never even heard of it. Neither had my family, friends, and many doctors and nurses have never heard of CRPS (RSD) either. However, 4 years ago when my journey with Chronic Migraine began, I learned that something as common as a headache could be even more mysterious and surprisingly harder to treat. I have been surviving a host of head difficulties: spinal headaches (Cerebro-spinal fluid imbalance), Cluster Headaches, Trigeminal Neuralgia (facial nerve pain) and Chronic Migraine which equals CONSTANT intense, debilitating head pain for the past 4 years straight.
But everyone knows what a migraine is. I could even buy pills at CVS for migraines and headaches, right? So why are there fewer medical options for my head pain than for a widely unheard of, “mysterious” and complex chronic pain condition like CRPS? It is baffling! This is debilitating chronic pain of the brain and doctors seem to have fewer resources and fewer answers to questions as well. It’s “ONLY a migraine” seems to be the overwhelming attitude of society and physicians, and it is because of a lack of awareness. I was part of that unaware group before 4 years ago…before my life and brain changed.
While chronic pain crippled me and affected my life and body in every way, most days I found some ways to function using walking aids like crutches or a wheel chair. In contrast, this pain in my head shuts down my thoughts, my eyes, memory, speech, my ears, balance, and just moving my arm or inhaling too deeply sends an electric jolt through my brain. My entire being is stunted due to my head pain. I would never ever want to minimize the horrors that chronic pain sufferers endure, but I had many more treatment options as a chronic pain sufferer compared to a headache disorder sufferer. In 11 years, I still have not reached the end of all options as a CRPS patient, but within a few months I had tried everything available for this horrible head pain.
Did you know that the NIH claims that Chronic Migraine and Cluster Headaches are 2 of the MOST DISABLING CONDITIONS in the U.S.? Thirty seven million Americans suffer from migraines; 2-3 million are chronic.
When I was diagnosed with chronic pain, there were so many tests, scans, physical therapy, both medical and alternative resources to exhaust, invasive injections, surgical options, non-invasive therapies, and tons of different kinds of medications. Even though the benefits were minimal, and most things I tried didn’t help at all, there were options available. And options feel a lot like HOPE when you are barely hanging on from the kind of pain CRPS causes. I feel as though it has taken so little time to expend the resources accessible for Migraine Disease, and even all of the headache doctors don’t seem very informed about what to do next, or how to answer what seem like simple questions. As I communicate with others with chronic migraine and other headache disorders, I have found that others feel the same about how their headache doctors treat their serious symptoms.
This is chronic pain of the brain, the part which controls everything in the body! It is WHO I AM. I am basically shut down for operation for most of the past 4 years. Be your own advocate? Try advocating for yourself when you can hardly speak, move, or open your eyes. When the room is spinning every time you move your head, a bird chirping can send you into a “suicide headache,” you dread something as simple as flushing the toilet, swallowing your water, or even blinking your eyes the pain is so unbearable.
Your senses are held prisoner by chronic pain of the brain- the part of you that registers all of the pain signals in your body, and now has become nothing but pain itself. This is not good enough. There are too many of us, and we deserve so much better than a life whispering in the dark.
If you are surviving Chronic Migraine, chronic pain, or other painful debilitating neurological conditions, you are not alone. February 29th is Rare Disease Day. Please share to help spread awareness. Thank you for visiting and for commenting.
In the U.S., more than 37 mill. people suffer from migraines. Studies suggest 13% of U.S. adults have migraines, and 2-3 mill. migraine sufferers are chronic.
Almost 5 million in the U.S. get at least one migraine attack per month, while more than 11 mill. people are moderately to severely disabled due to migraines.
Migraines cost the U.S. more than 31 Billion per year in healthcare
Only $19 million goes into researching migraine disorders
~Find me at @aBodyofHope on Twitter
www.Facebook.com/Living.with.RSD for a positive chronic pain support group welcoming all types of chronic pain conditions
Since my blogging experiment began this past August, I have met some fascinating individuals who have injected so much color and warmth into my little world…even without needles. I just want to take a quick sec to say, Hey beautiful (or Hello there, handsome sir, if you are a gentleman)! Thank you for taking the time out to read my mind splatter. Thank you for leaving your own bits and pieces of brain in the comments section. You’ll never know how much your thoughtful words propel more ideas, more writing, and how you breathe rays of excitement into my life. In such a short time, we have started building friendships or we are getting to know one another through our mutual blogs. When I haven’t seen you around for a while, I get concerned you might not be doing well, or have become lost, wandering around a very, very large shopping mall somewhere (it can happen). You have left a mark my heart (in a good way) and I just want to make sure you know I think you are the bees knees, gorgeous (or good show, jolly old chap)!
Three bloggers who are not only a few of my favorites for their wonderfully honest and insightful writing, but I’m also extremely thankful for their support: Finding out Fibro, Life in Slow Motion, and Escharae inspired this post. As we do here every month, I’d like to give a shout out to few fantastical, fabulicious blogs that I’ve fallen for more recently, and I hope you will as well.
Creating Through the Pain: Kathleen is working on finishing up her first book while she blogs about her family, her faith, and her personal experiences managing CRPS/RSD. Kathleen has a creative whimsical touch to her writing which I always find heartwarming.
The Sick Diva: is a brand new blogger who brings a splash of sass and a big dose of wisdom right out of the blogging gate! She mixes original poetry with posts about her life adapting to Chronic Pain and all of its new challenges.
In the Blink of an Eye: Author, Mary Jane Gonzales is well known in the chronic pain community for her intimate and inspirational books, but she also has a very informative blog to help those with RSD/CRPS, along with their caretakers. She is active in the Facebook community where she shares her freshly-written pieces almost every day. She is a gem!
Mum C. Writes: Is a fantastic poetry page brimming with powerful verse daily. Mum C. writes about love, humanity, pain, hope and everything in between. She is full of passion for African issues and is so generous with her talent.
Sublime Mercies: Shares her witty perspectives on walking aids and being disabled while raising awareness for disability issues, PTSD and child abuse. She always shares bright colorful images and celebrates vintage fashion and femininity.
Thank you to all of the readers who have followed and whose comments encourage, and thank you to the amazing guest writers and fantastic featured artists whose work has appeared here thus far. I’m so uplifted by the creativity and hope messages I’ve seen surrounding this page. This has been a lovely fall of creativity, new discoveries and making new friends in you lovely peeps. I look forward to a fabulous new year of writing along with you!
If you would like to stalk me or share your story, you can find me on Twitter @aBodyofHope or email me at firstname.lastname@example.org.