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The Woman in Room Number 3: poem by Karen Brown

The Woman in Room Number Three by Karen Brown

Jesus I asked, would You please make me well, so I can find a new place to dwell,

Could You please heal my body, show me the way, I’m willing to do whatever You say.

Jesus I asked, could I just use one arm, this alone would work like a charm
To give me a life with so much less strife.

Oh Jesus, I asked, could You help me today to realize Your power in a whole new way?

Then Jesus responded, He answered me sure, showing me something I’d not seen before…
“My child I love you more than you know, and I’ve called you to be where no one will go,
In a place where I want My presence to show;
You see when you gave Me your life on that wonderful day,
I already had you walking the way that would reach those people who I wanted to touch;
How else will they know that I love them so much?

So smile your smile,
let them see My Life,
shown glowing in the midst of your strife;
And Oh My Child, you will very soon see, that you’ll be dancing with Me… for eternity.”

Thank you so much for giving your permission to share, author Karen Brown, and a special thank you to Nancy Belz.

Gifts for people with Chronic Illness and Disabilities

Happy Holidays!

If you’re shopping for a loved one with a chronic illness, long-term illness, or disability, you may feel unsure of their needs, wants and unique daily circumstances. Here are a variety of gift ideas at every price point, with images and links to help you find the perfect gift for your loved one.

These suggestions are appropriate for someone who is mostly confined to their home or uses a walking aid, if applicable. Here are several gift ideas along with advice to help you shop!

(This content is not sponsored.)


Find_Prime._CB331800185_

Internet Subscriptions

Streaming video allows your chronic friend to watch movies and television series’ any time, instantly, from anywhere. Especially on those bad days when doing nothing but resting is the best and only option, distraction therapy like settling in to watch movies and television is a gift of entertainment that they will certainly thank you for. Netflix, Amazon Prime, or Hulu Plus are a few of the most popular video streaming services, and they all cost around $100-$125 per year.

The Amazon Prime subscription also allows access to a wide variety of ebooks, and music, alongside the streaming video service. The Amazon Prime 2-day shipping feature is a blessing for anyone who has trouble getting out to the shops. Now that Covid-19 demands that high risk individuals like us stay indoors, Amazon’s fast online delivery is a convenient alternative. In certain areas, Amazon has rolled out Fresh, a grocery delivery service which is another fabulous gift. Audible is another of Amazon’s subscription services, and quite a thoughtful gift. If your loved one is like so many of us with chronic illnesses, then reading books becomes a tricky task due to blurry eyes, migraine headaches, brain fog, memory decline, trouble concentrating due to pain, etc. Audio books can make reading enjoyable once again. Audible may or may not be on my Christmas list this year (hint officially dropped 😉).

Bluetooth Headband– wireless headwrap for sports, sleep, fashion, plays music through headband

Read the rest of this entry

This Day doesn’t belong to This Pain

You have every right to say that your days are bad from diagnosis onward. Pain roars and screams and spreads and bites down. It truly touches every part of our lives, and tries to destroy all that it touches.

But you are not your body. You are more than flesh and bone.

You have the power to tell your story the way you want it heard.

You don’t have to choose whether your days are black or white, either good or bad. This isn’t a multiple choice test between succeeding or failing.

We are all striving to find balance every day, moving forward despite our circumstances, seeking our best selves.

That is a victory.

Emoticon Withdrawal

emoticon-under-stress

I got a new working phone yesterday for my birthday! Woot woot!
I’m still playing around with it, but I have to say that it’s kind of stingy on the emoticons.

You don’t realize how far down the emoticon rabbit hole you’ve gone until all of those little faces are suddenly ripped from your life like a big yellow blur. (Insert sad face here)

Goodbye winky face: you helped me keep my foot out of my mouth so, so, so many times. (insert yikes face here) Now, I’ll have to rely on the ‘LOL’ to save me from myself.

Farewell Tear face: How will anyone know I’m sad? Words just don’t do what one little tear face can.

Mr. Smiley Face, I will miss you the most. Your good old classic “I’m smiling” demeanor may be overused, may at times be the inappropriate emoticon for people to utilize and get on my nerves (rolling eyes face), but you never get old. Keep on smiling, Mr. Smiley!

(Insert 2 laughing faces, winky, and blowing kiss face)

Yep, I would have nailed those emoticons (thumbs up symbol to myself).

Fire Brick Road: poem

~Fire Brick Road~

Down this yellow brick road of fire and pain

There are things that you’ll learn and there’s knowledge you’ll gain.

*

You learn people prefer when you’re funny instead

Of telling the truth about how bad things get.

 *

You’ll figure it out that folks get annoyed

When you tell them you’re hurting when they’re feeling joy.

 *

If someone asks about your health facts,

You must pair each truth with a blessing you have.

*

Otherwise, they will think that you are pathetic,

Even though they may really seem sympathetic.

*

Make sure to be cautious about each complaint,

You’re “sick” now so people expect you to act like a saint!

 *

A bit more advice as you walk the path:

You’ll subtract a few friends, so learn some quick math.

 *

You’re just not fun like they remember,

But hang on to the ones who will love you forever.

 *

If you are grateful, then you will do better

The things that are negative really can fester.

 *

If someone else tries to meet a need,

It’s best to say “thanks!” and learn to receive.

 *

This yellow brick road of fire and ice

Has more stuff like: Doctors, and money, and guilt… OH MY!

 *

But on this road you aren’t alone

God’s with you, and others who limp it in toe.

 *

So when you are ready just reach on out,

Someone will be here; there’s always traffic on this route.

-by A Body of Hope

*************

Yellow Brick Road painting| by Artist Andrea on Etsy | "Fire Brick Road Poem" #RSD #CRPS Nervember Invisible illness. chronic illness. Spoonie. Wizard of Oz. Tongue and cheek poem about how to live with chronic pain. #abodyofhope

Yellow Brick Road | by Artist Andrea

Thank you to Artist Andrea for allowing her awesome Yellow Brick Road painting to be featured. Please go buy one of her unique original pieces from Etsy. Many of her paintings have the spirit of Frida Kahlo. Check them out!

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