I have had many fearful adventures during my journey struggling with RSD/CRPS. Let me start off at the beginning…
Please help me welcome our guest writer today, Nikki Fortner!
Possible trigger warning to our readers.
I was diagnosed with RSD when I was 14 yrs old. I am now 16 going on 17. From the very start, I feared many things. I was scared I wasn’t fixable, I was afraid of what was going to happen to me, most of all I was terrified how my mom was handling it and I couldn’t help her and she couldn’t help me. After her fighting for 2 to 3 years with 5+ doctors to get a correct diagnosis we finally received one in June of 2014. The day we found out the diagnoses (of Complex Regional Pain Syndrome) a lot of emotions filled my mind and body. I was happy because we finally knew what it was that was causing me such horrible pain but I was scared because there wasn’t a cure for it. The doctor I see currently has honestly been the best doctor I could have asked for.
However, things turned the wrong direction on December 14, 2015. I was walking on a sidewalk and stepped into a hole and broke my ankle where the RSD is located. I was put in a cast for 8 weeks. During this time my RSD pain honestly wasn’t bad at all I was just scared of what would happen when I came out of the cast.
Here we are, present day two days after my recent nerve block and my scariest experience in my life yet. April 4, 2016, nerve block number 3. From the moment we walked in the door that day I knew something was off all around.
My normal lady who does my IV didn’t that day. The lady that did do it, however, messed up bad. When she put the IV in, blood went everywhere and she said it would be fine, but it wasn’t. My arm was burning and I just knew something wasn’t right. I got really scared and I looked at my mom and said, “I’m scared” and she said. “everything is going to be ok” and that when I freaked out and started crying again. I told my regular nurse and she came over and re-did the IV in my other arm and everything was okay after that. They took me back to the O.R and even back there I had this weird vibe. So it went on anyways, I thought it was just me.
My doctor did the time out and then gave me the anesthesia. He gave me one and realized it wasn’t enough because I was still awake. He gave me another dosage and that still wasn’t enough, so he hit me with one more and that knocked me out- hard. The procedure went on but this time, a medication was added to my nerve block to make it better and last longer. When I was trying to wake up something still didn’t feel right I didn’t feel like I normally do when waking up from anesthesia. It took me way longer than normal and by the time they wanted to discharge me I still felt dizzy and sick. We got the paperwork and we left.
The whole way home I slept which I normally don’t do until I get home. When we got home and I went to go to the restroom, everything went downhill from that instant I sat down…. all of a sudden I felt very sick to my stomach and dizzy. Thankfully, my mom was downstairs, but before I could even yell to have her come help me, everything went black, and I passed out for a good 10 minutes. My head slammed against our bathtub. Half my body was in the tub and the other half was out.
The next thing I knew I heard my mom screaming and I had literally 9 paramedics overtop of me sticking me, and poking me, and running tests until I woke up and threw up all over my mom (sorry for the detail). I was taken to the hospital by my house via ambulance where they ran more tests and determined it was too much anesthesia. They pumped 3 bags of fluids in me and sent me home.
Since then I have been fine and feeling better but that honestly had to be a terrifying experience of not only my RSD/ CRPS journey but my entire life as well. I’m so thankful to have people by my side during this journey as well, so thank you Nettie Moneski my mom, Noah Herman my boyfriend, Michelle Craig Hoyt a good family friend, Jimmy Shanks, my grandfather and grandmother, Amelia Catherine Gish my best friend, and to everyone else, thank you guys so much, I couldn’t go through this without you guys!! Love you guys so much!!
-written by RSD survivor, Nikki Fortner, age 16