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Remembering When: poem

Don't Touch | Zazzle/MixyPixie. "Remembering When" #RSD #CRPS Poem about Family and Life with Chronic Pain. #Spoonie

Don’t Touch | Zazzle/MixyPixie

~Remembering When~

I Think About The Time When My
Days Were Mine to Call,
I Didn’t Have To Think About
Meds or Charging At ALL!!!

I Used To LOVE Hugs And being Touched
You See- I Grew Up That Way-
But NOW When People Come Near Me
I Want To Shy Away

I Used To Be The Life Of The Party
Never Sitting Still For A Moment
NOW I’m A Stranger Even In My Own Body
And I Can’t Even Remember How I Got In It!

Of Course I Am Happy To Be Alive
I Still Have So Much To Give
I Just Want A Life That Doesn’t Hurt So Much
Just To Wake Up And Live

-written by Kelly Lynn Edholm

******

Guest Contributor, Kelly Lynn has been surviving Complex Regional Pain Syndrome/RSD since 2007 along with other health challenges. She is a mother, a grandmother, an artist, teacher to the disabled, and places her faith in God first in her life. The “charging” she is referring to is her Spinal Cord Implant which is meant to help reduce pain. Thank you so much Kelly for expressing so clearly what many of us feel. 

This is the last of the Nervember Series. Visit Categories to see all of the RSD/CRPS Awareness posts from this past month.

In The Darkness: poem

~In The Darkness~

Laying in the darkness
Laying all alone
When most people are fast asleep
I lie here awake in the burn

Awake not because I want to be
Awake because that’s all I know how to be
My body is crying please let me rest
But my body is also making it impossible to rest

Every nerve in my body
Flaring at the same time
A twitch here
A spark there
Needles everywhere

When pain is a factor
When there is no way to be pain free
There are so many things
We must learn how to be

Learn how to laugh
Learn how to smile
Learn how to be touched
Learn how to be the person we used to be

But in the darkness
And in the pain
There is a way to feel peace again

For me it was such an easy thing
For I am truly not in this alone
I have HIM right within me
Making this journey a little easier

All I have to do is TRUST and BELIEVE
And so can YOU!

-guest writer, Kristen Braatz

*****************

Kristen Braatz is a writer of poetry, loving mother, RSD/ Complex Regional Pain Syndrome survivor, and lives with other chronic illnesses. She is involved in her church and in the online chronic pain support community. Two of her favorite passages are Isaiah 45:9-10Isaiah 40:28-31. I am so grateful she is a contributor to A Body of Hope!

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