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Stronger than Monsters: Chronic Pain

(Trigger Warning: Addresses thoughts of death.)

Before a sprained ankle which turned into the chronic pain disease they call Complex Regional Pain Syndrome changed my life at 22 years old, I never knew anyone could feel that much pain. After the doctors told me that this would be PERMANENT, I thought, “I cannot go on like this.”

When I learned that the pain of CRPS can spread all over the entire body and into the organs, I said, “I refuse to live that way.”

Other survivors told me of their broken un-moving bodies from the damage and spreading of CRPS over time and I knew: I would never be able to endure it.

Even in all of my pain, I knew there was so much more to be had. If I was at my breaking point of what I could tolerate then, the future I was promised would never be one I could shoulder.

Fear and doubt spread into me like the pain biting into my body. The fire in my bones was a kindling waiting to ignite the rest of the forest. The pain living inside of me was a monster whispering promises of pain and ensuring me a future of horrors. I knew I could not live through it.

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All of my nightmares came to visit me. More, in fact. The years I spent in fear of the pain to come could have never prepared me for the obliteration of my senses which would ensue in these recent years. I cannot say I am still standing, but to say I am still here and just to be coherently typing this is a tremendous miracle, celebration and gift. Yes, even in worse pain than ever before, and much worse than I could have ever imagined- it is still a gift.

The thing about pain is that most people see the other side of it. You go through the hard parts and crawl out on the other side feeling stronger. But what if the worst pain you ever felt was a only a promise of more terrible things to come? That is what some illnesses like RSD, CRPS, MS, ALS, Chiari Malformation, and Arthritis often are: degenerative, debilitating and extraordinarily painful.

I thought I saw into my future of pain, but I could never have foreseen exactly THIS.

This journey has been unique to me as now I realize everyone’s is. I so feared my future because I believed mine would look like someone else’s that I had read about online or was told of in a doctor’s office, but no one’s life is so simple. I have met more unimaginable monsters– but I have survived all of them when I once was sure I couldn’t bear my first few years of chronic pain. I used to live each moment in fear of the future and now that the future has come to pass, how can I continue living in fear? I have fought worse monsters than I was preparing to battle, and I am more grateful to be living now and less fearful than ever before.

Don’t expect the worst. But if your worst comes, don’t assume you know how you will weather it. The strength and resources come at the step you need them, not years or months ahead. Have faith. You are so much stronger than you know.

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“Those who wait for the Lord will gain new strength; They will mount up with wings like eagles, They will run and not get tired, They will walk and not become weary.”

Isaiah 40:31

“Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.”  Joshua 1:9

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Featured artwork by Born in November. Thank you to the artist for allowing her powerful, striking photograph You Could Feel the Sky to be displayed here. Please go to her shop and buy one of her conceptual art images or visit her home decor shop to purchase a gift for the holidays.

thelastsparrow.etsy.com

Etsy.com/shop/borninnovember

RSD/CRPS Challenge Day 2: Time of Diagnosis

A compelling personal story of a young woman who was diagnosed with what is known as the most painful condition to endure- at only 12 years old. This is her recalling her diagnosis.

College on Crutches

Today is Day 2 of the RSD/CRPS Photo Challenge! I’m doing a mix of photos and words/stories for my posts. If you’d like to join in, please do! The challenge is a great way to spread awareness about RSD/CRPS while learning about each other.

Day 2: A picture of you around the time that you were diagnosed with RSD.

IMG_5350

I don’t usually post pictures of my face on here, mostly because I don’t want people I know to find my blog. (I think that would change how free/comfortable I am with being real about everything, so I prefer to stay more anonymous…but I guess people would easily be able to figure out that it’s me anyways simply by reading what I post…) Anyways, for the purposes of this challenge, I’m adding this picture. It was taken in August of 2006, a few weeks after my diagnosis. I was 12…

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