This Day doesn’t belong to This Pain

You have every right to say that your days are bad from diagnosis onward. Pain roars and screams and spreads and bites down. It truly touches every part of our lives, and tries to destroy all that it touches.

But you are not your body. You are more than flesh and bone.

You have the power to tell your story the way you want it heard.

You don’t have to choose whether your days are black or white, either good or bad. This isn’t a multiple choice test between succeeding or failing.

We are all striving to find balance every day, moving forward despite our circumstances, seeking our best selves.

That is a victory.

Rare Disease Day: Now I’m Rare poster

Today is Leap Year Day, and it’s also Rare Disease Day. Since we have an extra day this year, why not raise awareness for infants, children, teens, young adults, and adult-adults with misunderstood, incurable, difficult to treat illnesses around the world? Thanks all.