Poem; Words Won’t Come- (written-Mon 22 Jan 2018)

My new UK friend with CRPS/RSD wrote this real and honest poem based on her personal struggle she has been forced to take on, despite her illness. I’m so touched and honored that she credits my recent post, “My Brain is Lost: Brain Fog Again” as her inspiration. Check out more of her poetry and please support her on her very brand new blog xo


hello dears, here is a poem I wrote recently, influenced by a Blog post made by a friend;

13;51 / Monday 22 January 2018

Poem; Words Won’t Come

“words won’t come, I’m feeling foggy, I think my brain slipped out on me
words won’t form, I have toffee teeth, there’s not much in clear vision, that I can see.”
I hear you perfectly hon, I feel the same these days,
I’ve been trying somehow to feel a little bit better,
But nothing works, from a dozen different ways

I feel a little vulnerable, I feel a Big Bit Lost, I feel back at five years old,
I feel at odds, with the rest of people, as if I’m a freak, they must leave out, in the cold

I’m not a criminal! I’m a quiet person, an Introvert, but I fear that’s not what they see
“we are loud! we are…

View original post 203 more words

About abodyofhope

I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 15 years living with chronic pain, patient advocacy has had a powerful effect on my life through meeting so many remarkable teens, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on. Eight years ago, I became bed-bound from a variety of secondary chronic illnesses. A procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. Over the years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces about spiritual wellness and finding quality of life inside of ongoing illness, I also share health research, awareness information, poetry, memes, art, and this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibro, CFS/ME, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard ;)

Posted on February 9, 2018, in Uncategorized. Bookmark the permalink. 3 Comments.

  1. Totally know & understand this experience!

    Liked by 1 person

    • Good morning Jennifer,
      For some reason I cannot seem to like or comment on your latest post (this is most certainly on my end, nothing to worry about on yours). I still wanted to reach out and let you know how deeply touched I was by your last post on the 23rd. I believe your gentle words have helped many on their road toward healing. God bless you,

      Liked by 1 person

      • Thank you Mary for your kind & encouraging words on my post The Marie Antoinette tea. They are greatly appreciated!

        I hope the technical glitches are rectified for you quickly, I have been receiving both likes & comments on this end…

        Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

A Complex Life

Living with Complex Regional Pain Syndrome

Get More Resilient

Our resiliency has limits, but we can always become more resilient.

My Life: Beauty Love and Chaos

Blog, Poems and Short Stories by Becky Allen



Tea With Jennifer

Living Grace, one day at a time...reflections on life, love & laughter


Living life with a chronic illness is definitely not easy. But I do my best to push through all the barriers this illness puts in front of me! In my heart and mind, I believe maintaining a positive outlook on all situations in life will carry us through to much better times! I hope you find the information that I provide both helpful and inspirational!

Miss Diagnoses

Life with assorted ailments

Pain Management Specialist in San Diego & La Jolla

Pain Specialist treating Intractable Pain & Treatment Resistant Depression


( writer )

Survivors Blog Here

Keep Moving Forward

#OneGoodThing Daily

Surprising silver linings in caregiving, food, art, style, travel, and more!

Sue Spitulnik

Writing, Sewing, Travel, and Thoughts

Doss Doc's

Father Figure for Hire

%d bloggers like this: