Holiday Heroes, a love letter

Holiday Heroes, a love letter: article about the courage it takes to survive celebrations when you are disabled or chronically ill. #spoonieThose with chronic illness, chronic pain, and disabilities are all heroes to me. I know yesterday was hard. The holidays are always a challenge no matter where on the spectrum of disabled you are, celebrations push us to our limits.

We mentally feel pushed to be up and feel grateful or in the spirit of the season. When pain and illness bombards our thoughts constantly, at times it can feel like a mountain to climb to find a hint of the same holiday spirit we once felt. Physically, we are pushed to do the things we really want to do like spend the time with the people we most want to see, bake, shop, go to sporting events, etc. Some in the “Spoonie” community cannot leave home any longer or their illness is such that they are now confined to a bed, yet they still find ways to express gratitude and the spirit of the season (heroes).

Many push to try to do things we’ve always done despite our declining health like cook, or play a sport or game with everyone else. Even though I’m confined to a bed in a back room while the family is having dinner and festivities, this year I pushed myself to change into something cute. Honestly, changing clothes took away from my energy and added to my pain; I know I could have used those spoons to spend more time with a loved one later on. When I was still able to cook, I overdid it in the kitchen and my pain would spike. The truth is, some of our actions aren’t for other people, some things we do are just for us- and it’s healthy! I have spent the last few holidays either in days old pajamas or in the hospital, so changing clothes helped remind ME of who I used to be. And I’m so grateful I had some extra spoons to do something so frivolous this year and still have some quiet moments with a few loved ones as well.

I know spending time around your family takes so much courage for fear of getting bumped and pain skyrocketing, eating a bite of something that triggers your body to become inflamed, or an unexpected noise setting off a migraine or cluster headache- these are some of the sacrifices you make for LOVE. You are brave and you are warriors. If you always listened to the will of your body, you may never open your eyes each day. Your body tells you NO!!! But your heart calls. Your heart is always stronger. And I admire each and every one of you. You teach me courage. During the holiday season, we make many sacrifices: trading spoons for love of others and longing for who we still are inside. Balancing emotional needs and physical needs. Always juggling.
That is why those with chronic illness and the disabled are my heroes.

*

“Courage doesn’t always roar. Sometimes courage is the little voice at the end of the day that says I’ll try again tomorrow.” ― Mary Anne Radmacher

Articles to Reinvigorate your Spirit:

“Quiet Strength” by Choosing Hope

“The Deepness” by A Beautiful Life with Cancer

“Through it All” Poem by Mum C.

“Is Jesus Enough to get you through the Lonely Moments?” by Rest Ministries

“Square Plates are an Abomination on the Face of a Dying Earth” by Snotting Black

Advertisements

About abodyofhope

I do not know why it is that we must wade through tragic circumstances to find truth. We nearly drown! But under the water, there are pearls. I hope in writing this blog, more will come to the surface. Over the past 11 years living with chronic pain, patient advocacy has affected my life through so many remarkable young people, women and men: SURVIVORS. These individuals are HOPE personified. I wish to honor them in the same spirit they have encouraged me to press on. Four years ago, I became bed-bound from a variety of chronic illnesses after a procedure meant to help the pain condition I had been managing for several years- went bust #BIGTIME. In the last 4 years, my entire life has changed. I have changed, but I am still striving to live my best life possible. Along with sharing inspiring pieces, medical/holistic research, and awareness articles, this blog is also an attempt to put my own pieces back together. Welcome to A Body of Hope, and thank you for visiting. [Complex Regional Pain Syndrome/ RSD, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Chronic Intractable Migraine, Cluster headache, Trigeminal Neuralgia, Occipital Neuralgia, Hypersensitivity to Sound & Light, Fibromyalgia, Cerebrospinal Fluid Imbalance......blah, blah, blah] >>> P.S. My headgear is protective for pain. I just rock it hard.

Posted on November 28, 2014, in Chronic Illness, Holidays, Inspiration and tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink. 2 Comments.

  1. Jackie Saulmon Ramirez

    That was good, and quite true, I think. I love that quote up there and I think we should all see this at least once a week:

    “Courage doesn’t always roar. Sometimes courage is the little voice at the end of the day that says I’ll try again tomorrow.” ― Mary Anne Radmacher

    Thank you for this – exactly at the right time. ❤

    Like

  2. I very much agree with your perspective on gratitude. It makes such a difference to look for the good things in our lives.
    Thank you for featuring me in your post. Sending love your way!

    Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

On The Right Path

Promoting happiness, while living with CRPS and mental health disorders

cancer killing recipe

Just another WordPress.com site

The Crow Diaries

Life, Love, and Everything Else

painintheBECK

Pain + Perserverence + A Sense of Humor= Living Each Day, One at a Time

The Invisible Warrior

Living, Learning, and Loving with chronic illness

As Ellie

Making the most out of life as a chronically ill teenager and trying to make a difference.

mySestina

glory of words

Eponine Josette

"It's such a liability to love another person."

Calmare Therapy NJ USA

a drug-free neuropathic pain solution

The Terrified Democrat

Combining life with disability and politics

Wear, Tear, & Care

Conquering Chronic Pain

The Bipolar Compass

It's OK to feel lost every once in a while

Undiagnosed Warrior

Be brave, little fighter. There's a warrior within you.

Dizzy Deaf Warrior

Battling Chronic Health Issues One Day at a Time and Trying to Live a Normal Life

iamchronic

Writing Through The Tragedy And Terrible Beauty Of A Life In Chronic Pain

ms mary p

lifestyle blog with a focus on arthritis

%d bloggers like this: